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CLL and Abnormal FISH results: Need some insight & encouragement
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (15)Comment receiving replies
@prayerful4ever did you doctor suggest any supplements for CLL?
Replies to "@prayerful4ever did you doctor suggest any supplements for CLL?"
Good morning, @sveta25 I just wanted to reiterated the importance of your husband not taking supplements without the approval of his doctor while in an active cancer situation. This was guidance I received from both my Mayo bone marrow transplant team, including team pharmacist and doctor, and also my local oncology team.
It is better not to take anything that the doctor hasn’t approved in this case. Especially with blood cancers, many supplements can impact our blood such as interfering with clotting by acting as blood thinners, interfering with efficacy of medications, damage to organs such as liver or kidneys, or causing an imbalance which can lead to oxidative stress, a process that can damage DNA. DNA damage is associated with negative health effects, including cancer.
Supplements aren’t regulated or tested in compliance with standard testing. There isn’t much of a data base with statistics available for drug interaction. Adding supplements, which can have unpredictable side effects, tosses in one more variable that doctors have to be concerned with when trying to make decisions about treatment. So for now, it’s just better to hold off.
I know you’re trying desperately to help your husband but no supplement will change his health in the 3 weeks before his appointment with his doctor. The best bet is to make list of questions to ask at that time, including supplements.
For now, your hubby is stable and nothing is expected to change before his appointment. Keep in mind that CLL remains one of the more successfully treated blood conditions and he hasn’t even started treatment yet. So this is not the time to be consumed about ‘what if’…
Having survived leukemia myself, I really encourage you to take a breather from all the research, and just enjoy the holidays with your husband and family.
I’ll leave you with this, one of my favorite quotes from an unknown source:
Fear does not stop death. It stops life
And worrying does not take away tomorrow’s troubles.
It takes away today’s peace.
I wish you and your family peace for the holiday season and Happy, Healthy New Year
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@sveta25 No, He did not suggest any supplements.