Connect
← Return to Recently diagnosed with MDS with anemia and would like to connect
Discussion
Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Mar 14 11:59am | Replies (119)Comment receiving replies
I have MDs with hg levels between 9.0 & 11. When doing any activity I lose energy quickly, my heart speeds up & I feel air hungry, like not enough oxygen. I have to stop, sit down and recover for a minute. My hemotologist says I shouldn’t feel this with my hug levels sniff it must be something else. I think I just use more oxygen than others. Anybody else have this ?
Replies to "I have MDs with hg levels between 9.0 & 11. When doing any activity I lose..."
I have MDS too. Anemia is being treated with Procreit shots every 2 weeks. Started eating beans & spinach. We'll see if that helps. Cannot reach 12!
Bjw
Thank you, Lori...
Reblozyl did not help increase levels..he will be starting Inqovi tablets , possibly next week. Five days of tablets and then 3 weeks off. We shall hope for the best.
I have MDS. Cannot reach 12!
On Procreit. Now I am eating spinach & beans. Will it do it?
I've decided to work with my diet. I can't seem to reach 12. Beans, spinach and clam chowder are on the top of my list. My appt is in a week. I'll report to you if it helps.
I have MDS with anemia but I am 77 years old also. I have read that this disease can cause shortness of breath. Do a little research. Make sure you have a good Oncologist
Connect
I have MDS with anemia. I exercise by walking. I have some problems with getting out of breath. I sit and rest then am ok. Are you receiving any treatment?