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T cell large granulocytic leukemia

Blood Cancers & Disorders | Last Active: Jan 10 8:22am | Replies (33)

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Profile picture for Lori, Volunteer Mentor @loribmt

@salma5k You’ve come to the right place then! There are several members in this group with LGL. If you’ve read though this discussion from the beginning then you’ve been introduced with @dburkert @jumper123 @marlow2 and others. Feel free to tag members to ask questions and have a chat. It can be so helpful being able to talk with someone who has walked the walk!

Since you’ve also been diagnosied with smoldering myeloma, a quick search brought up the relevent discussions for you regarding SM.
https://connect.mayoclinic.org/search/
How have you been coping with both diagnoses? Have you undergone treatments for either condition or in an active surveillance phase?

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Replies to "@salma5k You’ve come to the right place then! There are several members in this group with..."

@loribmt It's been a bit tumultuous as I am also trying to wield Crohn's disease. Thus far, no treatment for the Smoldering Myeloma or the TLGL, but I surmise that may be changing in the near future. I do my best to stay positive and maintain an optimistic disposition. Although I must admit, I am not as successful as I would like to be.