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To continue or stop Venclexta treatment for CLL?
Blood Cancers & Disorders | Last Active: Dec 16 2:22pm | Replies (29)Comment receiving replies
@loribmt Thank you Lori very, very, very much for all the information you’ve given me.
He wants to wait till his January 6 appointment at Florida Cancel Specialists, this time our DIL will join us
and maybe she will be able to ask right question and be more insistent than me. I feel like I am not doing enough and am not asking right questions.
I wish his doctor would be as diligent as yours and would suggest Mayo clinic.
PA at MOFFITT said the same thing as my husband’s
oncologist in Venice FL, however it was a month ago and he was not loosing weight as much.
God bless you for helping and being my moral support.
Wish you a Happy Healthy holidays.
Replies to "@loribmt Thank you Lori very, very, very much for all the information you’ve given me. He..."
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@sveta25 I’m right here for you any time. I’ve had a crazy ride with my own blood cancer odyssey 7 years ago at this time. So I’m well aware of the anxiety that plagues the caregivers/spouses of a cancer patient.
As patients, we’re just along for the ride, at the direction of our care teams. As the caregiver, you bear the brunt of the frustration and helplessness that comes with seeing your partner suffer.
What troubles me is that you don’t think that YOU’RE doing enough. Let me pull you in for a hug and tell you that you are doing enough! You’re a very caring, loving life partner and you’re struggling right now because you’re feeling helpless about your husband’s health. I watched my husband age with my cancer diagnosis! It comes with the territory.
Let me see if I can calm your jitters a bit. Your husband was seen in November at Moffitt and the PA there concurred with your husband’s current oncologist. Knowing that, I think you can take some comfort with the knowledge that your husband’s labs were evaluated at both clinics and there haven’t been drastic changes such as blast cells being noted.
The weight loss is concerning to you but like I mentioned before, when people are ill, often their eating habits change. So, while, blood cancers do consume more energy and can cause weight loss, so do things like stress and anxiety. He just may not be eating as much right now.
Other than weight loss is he feeling ok? His hemoglobin is pretty good so he shouldn’t be too short of breath. Is he eating normally and drinking plenty of water? Do you find he’s eating less, change of bowel habits with diarrhea? How about a fever?
For now, with the holiday season upon us, knowing your husband has an appointment in 21 short days you should relax and enjoy the holidays! His blood work and condition seem pretty stable and the doctor isn’t expecting a dramatic change between now and then. I know from experience we don’t get a longer leash between appointments if we’re not stable! Focus on family and friends, the sights, the sounds of laughter during the holidays. After the new year, come up with your list of questions for the doctor and take it from there! It’s wonderful that your daughter-in-law is going with…helps to have another set of ears!
Please be at peace through the holidays and beyond! ❣️