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T cell large granulocytic leukemia

Blood Cancers & Disorders | Last Active: Jan 10 8:22am | Replies (33)

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@loribmt Thank you for the warm welcome! I am a 50-year old woman that was diagnosed with Smoldering Myeloma in December of 2010 and T-cell Large Granular Lymphocytic Leukemia in March of 2019. I am looking to connect with cancer patients in general, but particularly with those diagnosed with TLGL.

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Replies to "@loribmt Thank you for the warm welcome! I am a 50-year old woman that was diagnosed..."

@salma5k You’ve come to the right place then! There are several members in this group with LGL. If you’ve read though this discussion from the beginning then you’ve been introduced with @dburkert @jumper123 @marlow2 and others. Feel free to tag members to ask questions and have a chat. It can be so helpful being able to talk with someone who has walked the walk!

Since you’ve also been diagnosied with smoldering myeloma, a quick search brought up the relevent discussions for you regarding SM.
https://connect.mayoclinic.org/search/
How have you been coping with both diagnoses? Have you undergone treatments for either condition or in an active surveillance phase?

@salma5k I am Paul Burkhart and have Tcell LGL. My blood chemistry is not to bad and treatment is not necessary yet.