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Angioimmuneoblastic T-Cell Lymphoma???

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (18)

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Profile picture for Lori, Volunteer Mentor @loribmt

@thenester When I had my allogeneic bone marrow transplant (using donor cells) I didn’t have anyone that I knew who’d gone through a transplant. My transplant team was amazing with sharing information and encouragement. But they didn’t have first hand knowledge. One day I actually met and spoke with 2 people who’d gone through the process when I was about 1.5 months post transplant…that was a mental boost like no other! They gave me hope. So that’s why I’m here, along with others to be a lifeline.

You’ll be having an autologous transplant (ASCT) using your own cells. I’d just written a reply a few days ago to another member who will be having an ASCT. You might be interested in reading that reply. Here is the link: https://connect.mayoclinic.org/comment/1450804/

Also, since you’re interested in speaking with other members who have had an ASCT, I’ve taken the liberty of doing a quick search for you. Feel free to read through the discussions and jump in anywhere. It’s helpful to tag a member that you want to reply to by including their full @name. Or simply hitting the blue reply button which will open a box in that comment so the person you’re writing to will be notified. Here are the results of the search! You can see you’re not alone in having this procedure: https://connect.mayoclinic.org/search/

Do you have a timeline for your transplant?

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Replies to "@thenester When I had my allogeneic bone marrow transplant (using donor cells) I didn’t have anyone..."

@loribmt @bizzylizzy @coloradored
Hi,
I want to say thank you to the three of you for sharing your experience and being helpful.
I am being admitted to the hospital on February 10th for my ASCT if my PET shows I am in remission- January 21st and I pass the evaluation (I will on both if these 🙏)
As I begin packing for my 7 week journey I can't help but feel extremely emotional and quite scared. I'm wondering if you have any words of advice?
It has been amazing to be able to chat with others who know exactly what the experience is...Even though I hate why we have to go through this.
Thank you in advance.
Jennifer