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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @sveta25. My hematologist oncologist called the Mayo Clinic-Rochester to discuss my case with a transplant doctor. I was currently in my local hospital (for 5 weeks) undergoing treatment for AML. Being high-risk for relapse left no other choice (at the time) but a BMT. My case was accepted immediately and several months later my husband and I relocated to Rochester for 4 months.

You mentioned that your husband, with CLL, had a 2nd opinion at Moffitt, which is a respected cancer center. Was their opinion in line with your husband’s current doctor? I’ve given you a lot of information over the past few days regarding his ongoing weight loss and your concerns about not waiting for a month more before he sees his doctor. It’s really ok to be the squeaky wheel if you’re having a ‘spidey-sense’ that things aren’t right! Have you called his doctor’s office yet?

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Replies to "Hi @sveta25. My hematologist oncologist called the Mayo Clinic-Rochester to discuss my case with a transplant..."

@loribmt Thank you Lori very, very, very much for all the information you’ve given me.
He wants to wait till his January 6 appointment at Florida Cancel Specialists, this time our DIL will join us
and maybe she will be able to ask right question and be more insistent than me. I feel like I am not doing enough and am not asking right questions.
I wish his doctor would be as diligent as yours and would suggest Mayo clinic.
PA at MOFFITT said the same thing as my husband’s
oncologist in Venice FL, however it was a month ago and he was not loosing weight as much.
God bless you for helping and being my moral support.
Wish you a Happy Healthy holidays.