← Return to To continue or stop Venclexta treatment for CLL?

Discussion
Comment receiving replies
Profile picture for sveta25 @sveta25

@loribmt How did you become patient of Mayo Clinic, did your oncologist give you referral?

Jump to this post


Replies to "@loribmt How did you become patient of Mayo Clinic, did your oncologist give you referral?"

Hi @sveta25. My hematologist oncologist called the Mayo Clinic-Rochester to discuss my case with a transplant doctor. I was currently in my local hospital (for 5 weeks) undergoing treatment for AML. Being high-risk for relapse left no other choice (at the time) but a BMT. My case was accepted immediately and several months later my husband and I relocated to Rochester for 4 months.

You mentioned that your husband, with CLL, had a 2nd opinion at Moffitt, which is a respected cancer center. Was their opinion in line with your husband’s current doctor? I’ve given you a lot of information over the past few days regarding his ongoing weight loss and your concerns about not waiting for a month more before he sees his doctor. It’s really ok to be the squeaky wheel if you’re having a ‘spidey-sense’ that things aren’t right! Have you called his doctor’s office yet?