1. < Parkinson's Disease
Profile picture for tngirl103

PD? Gastro and smell issues, constipation, sleep disorder, anemia

Posted by tngirl103 @tngirl103, Dec 12 1:39pm

I am concerned my husband has Parkinson’s. He has the missing smells constipation and REM sleep disorder. He has begun to have issues with gastrointestinal discomfort. Doctor can’t pinpoint. He gets very uncomfortable pain in his upper abdomen area. We have come to understand taking Pepcid helps. He is on pantoprozile (sp) but still experiences. Last year he was treated for ulcers which healed. Also he gets seriously anemic and requires iron infusions several times of year. I’ve not seen any comments about anemia related to Parkinson’s. Thank you

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for esther589
esther589 | @esther589 | Dec 13 9:28am

I have Parkinson's and also experience the upper abdominal discomfort.
I have had pantoprozile in tablet form and yesterday by IV. It only helps for short periods of time.
I also experience lots of smell, sleep disorder and difficulty walking.

REPLY
1 reply
Profile picture for tngirl103
tngirl103 | @tngirl103 | Dec 13 9:44am

Thanks so much for sharing this.
Debbie

REPLY
Profile picture for bmfoster
bmfoster | @bmfoster | Dec 13 3:27pm

The GI issues are some of the more bothersome ones with autonomic dysfunction and PD. Severe GERD put me in the hospital overnight as the symptoms were severe enough to make everyone suspect a heart attack. The gut slows down and GERD and constipation and bloating cause misery. A regimen of Miralax nightly with Senna tea every 2 to 3 weeks as needed helps significantly (approved by my gastroenterogist). Good luck and hang in there.

REPLY
1 reply
Profile picture for tngirl103
tngirl103 | @tngirl103 | Dec 14 6:05pm
In reply to @esther589 "I have Parkinson's and also experience the upper abdominal discomfort. I have had pantoprozile in tablet..." + (show)
Profile picture for esther589 @esther589

I have Parkinson's and also experience the upper abdominal discomfort.
I have had pantoprozile in tablet form and yesterday by IV. It only helps for short periods of time.
I also experience lots of smell, sleep disorder and difficulty walking.

Jump to this post

@esther589
Esther,
Did the kind of food eaten determine the pain? Acidic like tomatoes or fried foods? Or was it no matter what you eat? Just the slow action of the digestive tract causing likely gas?

REPLY
2 replies
Profile picture for tngirl103
tngirl103 | @tngirl103 | Dec 14 6:06pm
In reply to @bmfoster "The GI issues are some of the more bothersome ones with autonomic dysfunction and PD. Severe..." + (show)
Profile picture for bmfoster @bmfoster

The GI issues are some of the more bothersome ones with autonomic dysfunction and PD. Severe GERD put me in the hospital overnight as the symptoms were severe enough to make everyone suspect a heart attack. The gut slows down and GERD and constipation and bloating cause misery. A regimen of Miralax nightly with Senna tea every 2 to 3 weeks as needed helps significantly (approved by my gastroenterogist). Good luck and hang in there.

Jump to this post

@bmfoster
Did the kind of food eaten determine the pain? Acidic like tomatoes or fried foods? Or was it no matter what you eat? Just the slow action of the digestive tract causing likely gas?

REPLY
Profile picture for esther589
esther589 | @esther589 | Dec 14 10:27pm
In reply to @tngirl103 "@esther589 Esther, Did the kind of food eaten determine the pain? Acidic like tomatoes or fried..." + (show)
Profile picture for tngirl103 @tngirl103

@esther589
Esther,
Did the kind of food eaten determine the pain? Acidic like tomatoes or fried foods? Or was it no matter what you eat? Just the slow action of the digestive tract causing likely gas?

Jump to this post

@tngirl103
I have adjusted my diet this past month although it has always been pretty healthy.
Removing the following foods has helped with the reflux but I have to eat very small portions to avoid cramping and diarrhea.
Foods to avoid:
Tomatoes, citrus, dairy, onions, bread, processed foods, fried food,refined sugar, caffeine and alcohol.
Takes a bit of getting used to but it helps for sure.
Eating little and more often and not eating anything after 6pm but making sure to replenish fluids.
If you can afford them, electrolyte drinks recommended by your pharmacist can also help if you have days when food is not appealing.

REPLY
1 reply
Profile picture for tngirl103
tngirl103 | @tngirl103 | Dec 14 11:48pm
In reply to @esther589 "@tngirl103 I have adjusted my diet this past month although it has always been pretty healthy...." + (show)
Profile picture for esther589 @esther589

@tngirl103
I have adjusted my diet this past month although it has always been pretty healthy.
Removing the following foods has helped with the reflux but I have to eat very small portions to avoid cramping and diarrhea.
Foods to avoid:
Tomatoes, citrus, dairy, onions, bread, processed foods, fried food,refined sugar, caffeine and alcohol.
Takes a bit of getting used to but it helps for sure.
Eating little and more often and not eating anything after 6pm but making sure to replenish fluids.
If you can afford them, electrolyte drinks recommended by your pharmacist can also help if you have days when food is not appealing.

Jump to this post

@esther589
I really appreciate your taking time to share this.

REPLY
Profile picture for esther589
esther589 | @esther589 | Dec 15 2:09am

We're all here too help one another when we can. 🩷

REPLY
Profile picture for bmfoster
bmfoster | @bmfoster | Dec 15 8:05am
In reply to @tngirl103 "@esther589 Esther, Did the kind of food eaten determine the pain? Acidic like tomatoes or fried..." + (show)
Profile picture for tngirl103 @tngirl103

@esther589
Esther,
Did the kind of food eaten determine the pain? Acidic like tomatoes or fried foods? Or was it no matter what you eat? Just the slow action of the digestive tract causing likely gas?

Jump to this post

@tngirl103
Different foods exacerbate the bloating for sure, but can't always be predicted. Recommendations to increase fruits and vegetables to facilitate gut health sometimes result in worse bloating and abdominal pain. Eating 6 small meals instead of the standard 3 meals a day helps and using Miralax nightly (which can also cause bloating) keeps things moving. I also use a Probiotic ( Align) per rec my gastroenterologist.

REPLY
1 reply
Profile picture for tngirl103
tngirl103 | @tngirl103 | Dec 15 8:56am
In reply to @bmfoster "@tngirl103 Different foods exacerbate the bloating for sure, but can't always be predicted. Recommendations to increase..." + (show)
Profile picture for bmfoster @bmfoster

@tngirl103
Different foods exacerbate the bloating for sure, but can't always be predicted. Recommendations to increase fruits and vegetables to facilitate gut health sometimes result in worse bloating and abdominal pain. Eating 6 small meals instead of the standard 3 meals a day helps and using Miralax nightly (which can also cause bloating) keeps things moving. I also use a Probiotic ( Align) per rec my gastroenterologist.

Jump to this post

@bmfoster
Appreciate this sooo much!

REPLY
View MoreView Less
Please sign in or register to post a reply.