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Angioimmuneoblastic T-Cell Lymphoma???

Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (18)

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Thank you!
I've been doing my research on this reading through Mayo, MD Anderson, Dana Farber etc.
Very helpful.
I'd love to hear about the experiences from actual people. I have chatted with a few people on another site and that has been helpful.
I do have a caregiver (s) My husband and my sister will stay with us for a month to help out.

You are a very kind human-I see that you chat within quite a few threads. Your advice and know is invaluable!

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Replies to "Thank you! I've been doing my research on this reading through Mayo, MD Anderson, Dana Farber..."

@thenester When I had my allogeneic bone marrow transplant (using donor cells) I didn’t have anyone that I knew who’d gone through a transplant. My transplant team was amazing with sharing information and encouragement. But they didn’t have first hand knowledge. One day I actually met and spoke with 2 people who’d gone through the process when I was about 1.5 months post transplant…that was a mental boost like no other! They gave me hope. So that’s why I’m here, along with others to be a lifeline.

You’ll be having an autologous transplant (ASCT) using your own cells. I’d just written a reply a few days ago to another member who will be having an ASCT. You might be interested in reading that reply. Here is the link: https://connect.mayoclinic.org/comment/1450804/

Also, since you’re interested in speaking with other members who have had an ASCT, I’ve taken the liberty of doing a quick search for you. Feel free to read through the discussions and jump in anywhere. It’s helpful to tag a member that you want to reply to by including their full @name. Or simply hitting the blue reply button which will open a box in that comment so the person you’re writing to will be notified. Here are the results of the search! You can see you’re not alone in having this procedure: https://connect.mayoclinic.org/search/

Do you have a timeline for your transplant?