One year in and struggling

I just read your post and as of this morning started following this group. You sound like me! My husband had bilateral lung transplant in 2024 and there were complications as he was in the hospital for 66 days. I suddenly became a resident of Rochester for 7 months. While he is stable now and we've been home for some time, he doesn't have the energy/stamina he had prior and suffered quite a bit of muscle loss during the extended hospital stay. We are all so glad he survived and grateful! That said, I am a full on caregiver. I do the meds, make sure we have 2-3 weeks ready at a time, call the pharmacy for refills, schedule appointments, clean the house, walk the dogs, buy groceries, cook, it's exhausting at times. I'm not complaining, this is simply my reality. He is immunocompromised for life due to the meds he is on so hiring help to come in for cleaning etc isn't a good idea. I became so fatigued last Spring I saw an integrative Dr. and I decided to go on BHRT pellets (hormone replacement therapy) and my T3 was low normal so I was also put on thyroxine/levothyroxine. Not suggesting this for anyone, just discussing what I did. It has helped quite a bit. I do have better energy and arthritis in my hip disappeared. Aside from this, I take time when I can to walk with my friend for an hour or so on occasion. We live 25 miles apart so it's when we can. I also made a comittment to exercise in the morning before my husband gets up, before the day really starts. I tell my self when I don't feel like it or am tired, it's consistency that matters now how much I do, so some days I do less than others but I always feel better afterwards and better able to handle the day. It's going to be lifelong for us in this mode so I'm trying to improve my health as much as I can. We have to take care of ourselves. Oh and I love audible to listen to while out walking alone or with my dogs, it's a great break! If in the woods I prefer to hear nature. Hang in there, you are not alone!

Im same kind of person, for 2 years i ate , slept and drank my Mum's cancer to extend her life but it aged me massively, in my mid 60s, but if its who you are you won't change but yes try to get good quality food brought in . My food bill doubled cuz I bought all organic. The Dr said I " bought " my Mum 7 more months of life....it was worth it to me.
I know nothing of Prostrate Cancer but I see repeatedly how fasting starves cancer cells.
Dont want to give any false hope, but maybe check it out. Also I read some people do much better on treatment than others and its because their gut microbiology has 4 important bacteria strains...you can google them.
Wishing you luck....its a hard illness to watch in a loved one. My Mum was all i had, my hubby was passed at 57 yrs, so I dont regret a second.❤️

@anniesezu812 Thank you for sharing. We do whatever we can for those will love. ❤️
I will definitely do additional research on fasting but it’s challenging with his med schedule. Working on rebuilding his gut health & strength- thanks for the info!

@bano Thanks so much for sharing. I wasn’t complaining either, just getting used to the situation. So thankful hubby is still here with me, and through everything he has the best attitude. Absolutely adore him. I agree - love listening to nature! I think the focusing on my own care is the next piece of the puzzle. Thanks again

Full respect to your commitment and great love.
My husband has had three blood cancers and in August 2024 received an allogenic stem cell transplant. I can fully understand everything you are saying. My vow to myself was to save his life or die trying.
Thankfully he is doing well and in full remission. We are managing some graft versus host issues but generally life is very good.
I have a lot of anxiety and get counseling to help me deal with it. My “self care” consists of yoga at home, journaling, talking and messaging with friends, family and mentors every day, and time outdoors. I’ve dabbled in qi gong and “tapping” (EFT). I do spend most of my time with my husband. I also do peace activism and help out friends often. This has led to fairly good peace of mind for both of us, as my dear husband is more concerned for me than he is for himself.
Support groups and counseling are great. I wish you well.

My cousin would pay for me to get my nails done when I would travel to care for her. It’s hard to say yes and do it but it is a treat and is a break outside of the house. Splurge on DoorDash or Uber eats and get some meals delivered when YOU want them. Read a silly book on Kindle.