Connect
Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
Like
Helpful
HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Connect
@jessie1990 Jess how is your pain today? Are you sleeping ok? I hope you are finally home. 💕
-
Like -
Helpful -
Hug
1 Reaction@nannybb pain isn't so bad today I'm able to get up get around do a few bits sleep is ok just when I wake in the morning i am abit sore from lying in one spot all night over having staples I'm home since Thursday I've had surgery Monday they sent me home on Thursday morning at 11
-
Like -
Helpful -
Hug
2 Reactions@jessie1990 Absolutely splendid news!! You are a warrior queen. 👸💕
-
Like -
Helpful -
Hug
1 Reaction@nannybb thank you sweetie 🥰🥰 it's trying to sleep at night is no fun can't get comfy unless I'm sitting up right then I keep sliding down 🤣🤣 so I wake flat on my back then trying to get up with out stretching the staples can't wait for Thursday to get them out I might be able to sleep proper then 💕
@jessie1990 Hey Jess, so glad to hear from you❣️ Is your back still a bit numb? If not, and it really hurts when they start removing the staples, ask for something for pain. Just a suggestion. I had to have my son beg for pain killers I.V. when they went down my back with the needle and aspirated the rest of the fluid in my lung. I'm just saying...you got quite a few of those buggers. As far as sleep, have you tried rearranging pillows every which way for better comfort? Sometimes that can give relief for a bit. You just continue to have such a great attitude. You are amazing 👏 🤩 ❤️
-
Like -
Helpful -
Hug
1 Reaction@nannybb hi 😊nope numness is gone they gave me oxinorms I don't no do you no of them they are a really strong pain killer yes I've tried organising pillows I've even God duck feather pillows to see will it help.... nope still can't get comfy I've one More day after today till I get them out so I might be better then 🥰🥰
-
Like -
Helpful -
Hug
1 Reaction@nannybb did you say they took some lymph nodes off you also
Yes...5 which I don't understand because my tumor turned out to be small, and was benign when they did the biopsy. That is what the second opinion surgeon is having trouble undertaking. He said tge pathologist report showed it was small. And still he operated 🥹