@melton1918

Dear Debby,
My mother had bad HOCUM with no care until she was 80. She was dynamite and out worked everyone. I inherited her heart and I've been dealing with it with few symptoms other than severe fatigue. Without care, this is how you deal with it best: Rest. Don't ever, and I mean ever, push your heart to work hard. That means, you cannot run. That means when you tire, you rest. You just have to tell your friends and family your heart limits what you can do. My mother lived to be 93 and died from a stroke. She never had a heart attack. She rested every time that heart acted up and she had severe symptoms. The key is rest, don't push your body, rest.... Oh, and you probably know this already, no alcohol whatsoever.

@melton1918 Has your cardiologist started you on HCM medication? Camzyos? If not..... you def need a different cardio who has a clue. If you have a diagnosis they dont understand or know how to treat they need to refer you out. You can refer yourself out though with certain insurance, I have Cigna and do not need a referral. I got myself referred to Cleveland Clinic but I cant get in until March, but at least I'll have 3 months of this medication onboard so that may or may not be a benefit. Hugs and Prayers, please advocate for yourself.