Anyone with an Oncotype score of 61 choose no treatment after surgery?
I was diagnosed with HR+ HER2- Stage 3, Grade 3 breast cancer this past January. I had a unilateral mastectomy and 11 lymph nodes removed in March and my oncotype score came back extremely high at 61. I have chosen to forego the advised chemo, radiation, and numerous AI's recommended.
I am interested in finding anyone on this forum in a very similar situation (extremely high onco score and choice to forgo all treatment after surgery) to connect with. Thank you all.
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@myoga
Thank you for this reference. Although it mentions flaxseed as something to be careful taking with an aromatase inhibitors, it may be flaxseed in supplement form. When I asked my PA about flaxseed, she said it is okay when taken as a food, but not as a supplement which I assume is in a greater concentration.
Please lmk if I'm mistaken since I've resumed using flaxseed with yogurt.
@worried1111
As someone who was diagnosed with invasive ductal carcinoma, grade 3 and a relatively high oncotype score, I am interested in the chemo bringing your cancer down from grade 3 to grade 2. That is such encouraging news. I assume they would need to somehow have breast tissue to test again so wonder how they could determine the change? Is there some special kind of biopsy?
As I understand the Oncotype report, you get a score (29 in my case) and you get an estimate of risk of recurrence (18% in my case). Then you have to consider if you want to reduce the risk of recurrence. In your case, I'm guessing the risk of recurrence is high.
In my own case, I had surgery, radiation, AIs. My original cancer center did not do Oncotype of women over 70. I had to switch cancer centers to get it. Given my risk of recurrence, I'm now taking Kisqali (CDK4/6 inhibitor) as well as AI (exemestane now, anastrozole previously).
If you don't have a copy of your full Oncotype report, get it. If you don't understand it, there are BC non-profits that will review it for you and explain. Also, although a person may get very unpleasant side effects from radiation and/or AIs, many do not. I did not. But people like me don't post often about having nothing to report!
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2 Reactions@prarysky
I think you’re right. But there are articles that support the use of flaxseed. The links below is from wedmd
https://www.webmd.com/uterine-cancer/flaxseeds-and-cancer-warnings-what-you-should-know
“Enterolignans may also influence the type of estrogen you have most of in your body. The stronger form of estrogen (estradiol) has been linked to a higher risk of breast cancer. Studies in humans are very limited, but some suggest that in postmenopausal women, flaxseed consumption can lead to higher levels of a weaker form of estrogen (enterodiol and enterolactone). This form of estrogen is not linked to breast cancer growth. “
I think taken as food is fine. If you like it then that’s even better. I go by “everything in moderation”.
Wishing you a happy and healthy this holiday season.🤗
@peggydobbs
Thank you for your feedback! May I inquire your diagnosis and sugery dates? Also, have you had additional testing done since starting your group of AI's? If so, what were the findings? I understand that these are very personal questions and not everyone is comfortable sharing them on a public forum. Many thanks in advance, if you do.