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DiscussionDoes anyone have neuropathy related to MGUS?
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Replies to "I have neuropathy and MGUS, my doctor says it’s not related but I wonder?"
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@danaufkes hello and welcome to Mayo Clinics Connect. I hear a lot from members that their physicians don’t attribute neuropathy to MGUS. There are some resources that I believe may be helpful to you. https://www.foundationforpn.org/living-well/
Physicians are reluctant to jump to the conclusion that the dots between MGUS and PN are connected without more data. If you want to deep dive into the literature there is some out there. My hematologist/oncologist referred me to a neurologist who prescribed gabapentin, which I did not like because it made my fingers tingle and it was uncomfortable. So he discontinued that and prescribed pregabalin, which seems to be somewhat helpful. I had very sharp pains in my toes and the balls of my feet before the pregabalin and I rarely have that symptom now. I still have numbness. I do have type two diabetes, which is very well controlled and that’s far easier to connect to the neuropathy. Either way, reversing the symptoms of PN isn’t possible but the medication does make me more comfortable.
To what does your doctor attribute your peripheral neuropathy?