Recently diagnosed with osteoporosis and I am terrified
Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!
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What is your T-score? I felt the exact same way when I was diagnosed with osteoporosis and a T-score of -4.5. I felt very fragile. Many women freak out with a T-score of, for example, -3.2. My next scan showed -4.7, so I went on Tymlos for two years and ended up with a T-score of -3.8, which I was thrilled with. After the first year on Tymlos I felt stronger and began carefully bending and lifting, but no twisting. I am halfway through a year of Evenity and feeling good. I'm excited to see what my T-score will be at the end of the treatment.
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1 ReactionMy prayers are with you🤗🤗 I discovered 1 yr ago I have very severe Vertigo and have fallen and broken almost every bone in my body and head. Dr. PUTING me on shots no idea name. I just want to ask you to. Stay positive as hard as it sounds we will all be praying for you🙏🙏🤗🤞
I have no fix Depression and find it hard to be positive but it is essential so we MUST DO IT. 🤗🤗🌹🙏🌹
You have developed a “phobia” (mental fear and anxiety) around this. I suggest you consult with your doctor asap! We ALL age, our bodies change differently a d we “adapt.” From what you wrote, you need support in adapting to lower your anxiety levels. There are techniques, books, talk therapies, and/or medications. Please reach out because you are cherished by others. Thoughts of suicide are never the answer! As it causes others so much pain! (Speaking from experience here)
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2 ReactionsShelly Gladstein from OsteoBoston just posted this link
Here is your "playback" from Tuesday night:
"Bone Density Success - Members share strategies for their improved scores"
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2 Reactions@gravity3
I’m thrilled to know your osteoporosis has improved after a year on Evenity. I’ve been on the injections for 7 months with minimal side effects and would love to know what your doctor put you on after Evenity to lock in your new bone growth.
Happy Holidays
@loriesco I assure you, I am doing SO MUCH BETTER now! I don't know if there's a date on my original comment but it was a couple months ago and many things have changed since then. I have a mental health therapist now, someone who specializes in helping people cope with the fears associated with aging. While I still have episodes of anxiety, I am so much better at coping with them now. I wake up every morning and say out loud, "I am not a victim. I am strong and healthy and I'm going to get up and enjoy the day." And on the couple of occasions when I've gone to the "dark place in my mind" again, I just say, "Nope. You're not going there" and I focus on something else. I know that's not the answer. I also speak from experience, having lost my dad that way when I was 14. It might put me out of my own pain (or maybe not - who knows what happens after?) but one thing is for certain, and that is it would cause my family devastating pain. And why would I do that to them when I love them so much? Another thing that helped tremendously is reading all of the supportive comments on this thread! And so many success stories! I had made the mistake of joining a "support group" on Facebook and it was nothing but horror stories about living with osteoporosis. That's what made me go to the thoughts of suicide. I hadn't yet learned that those stories are the exception, not the rule, and that most people live good lives in spite of it. So thank you for your caring comments!
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4 Reactions@lezzzlie
He recommended Prolia. Although I have taken it several times I am still not comfortable with going down this path at 77. I've had minimal side effects - some leg discomfort. The dilemma is that I have already had 5 years on fosamax. My endocrinologist suggested that I try a smaller dose of reclast then perhaps a drug holiday, then return to Prolia in a few years if I live that long. I am wrestling with a decision but I have time. How about you?
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2 ReactionsWe seem to have a number of new members in the osteoporosis club. If you have not seen this from one of our members, it might be of interest.
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1 Reaction@gravity3
Sorry I thought I was responding to a gal on Evenity that had good results. I’m also 77 and have been on Evenity for 7 months with minimal side effects other than sore joints for a couple days. I’ll look into your Prolia after my 12th month. I hope you’re doing well. I’m grateful to medical professionals to keep me going. Happy Holidays
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2 Reactions@lezzzlie
It may be me who got that wrong. I often get lost in the threads here. What is your doc suggesting post evenity?
Happy holidays to you too.