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Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: 18 hours ago | Replies (146)Comment receiving replies
@allessio77
I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea 18 months ago. Also diagnosed with Waldenstroms lymphoma just started with Retuximab because doctor said that would decrease the PN pain. Only two infusions so far but I’m hoping that helps because sleeping has become a challenge from the PN. I’m hoping to see results down the road. 🙏🏽
Replies to "@allessio77 I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea..."
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@dunewalker Thanks for ur reply. My doc suggest Rituxamab for my IgM with antiMag. This is said to be the cause of my PN (20 years). I'm curious to know how your body reacts to the Rituximab. How bad is the fatique? Are you concerned about catching various infections? Any light you can shed on those issues would be appreciated. Take Care!