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CALR exon 9 mutation w/translocation of chromosomes 10 &13
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (11)Comment receiving replies
@daelitesmom I think you inherited your mom’s sense of humor! LOL.
You had me ‘raising my eyebrows’ with the mention of blood clots in your eyes! Now that I have more information I think what you mean are subconjunctival hemorrhages, they appear as red patches on the white part of the eye. They can be caused by a number of issues, including your ET, taking aspirin, etc. So, those aren’t generally serious but you’re right to report them.
My concern was that you had blood clots IN the eyeball. I’ve had that happen and it’s an immediate trip to the ER!
I hope you have success with the magnesium in reducing your headaches. If you have any gut issues, one form of mag to take to avoid that is Magnesium Glycinate. Kinder to the gut and very absorbable. What type are you taking?
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@loribmt Dr. Rashid (my neurologist) called it a "blood clot" in the white part of my eye so that's what I call it. Went to my doctors office that also had the walk-in clinic and apparently it's no longer there and, for added fun, my 12 year old doctor (she was a resident) apparently is no longer there as she graduated... FUN!! Now I have to get assigned to another 12 year old and then get established with them which means starting all over again...AGAIN... I just saw her six months ago and it was her who ordered the original bloodwork and referred me to my hematology oncologist to begin with.