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Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: 18 hours ago | Replies (146)Comment receiving replies
After 20 years of numbness and some pain lately with PN, I got tested and was diagnosed with IgM MGUS with MAG antibodies (over 64 times the normal range (Mine: >1:102400)). They said this is the CAUSE of my PN. Local Doc referred me to MAYO clinic in PHX for evaluation.
In a conversation with CLAUDE (AI), he said there are infusion treatments that may help reverse the PN. Rituximab is a first line treatment.
Anyone have any experience with this? Did it work?
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@allessio77
I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea 18 months ago. Also diagnosed with Waldenstroms lymphoma just started with Retuximab because doctor said that would decrease the PN pain. Only two infusions so far but I’m hoping that helps because sleeping has become a challenge from the PN. I’m hoping to see results down the road. 🙏🏽