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As I understand it - it is not unusual to take multiple specialists and time to diagnose someone with Parkinsons or one of 2 or 3 similar neurodegenerative diseases in the early stages. There are no blood tests to help differentiate the problem and some people take decades to develop full blown symptoms. It is discouraging for clinician and patient alike. I've been acting out my dreams for years before coming to understand this was REM sleep behavior disorder with up to 80 to 90 % of people who experience it developing Parkinsons, Multiple Systems Atrophy or Lewy Body Dementia over time. It took over 2 decades before fine motor skills and gait disturbances became a problem. Still no significant tremor. Clonazepam helps with sleep/dream problems and Midodrine helps with orthodontic hypotension, with q 6 month neurology followup for now. GI issues are a persistent problem, but manageable with Miralax nightly and Senna tea every 2 weeks if needed. Severe GERD treated with Voquenza with improvement. Ph yeah, regular exercise is a must. This process "ain't for sissies" ,but can be improved.

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Replies to "As I understand it - it is not unusual to take multiple specialists and time to..."

With the autonomic symptoms you are experiencing have you been offered testing in an autonomic lab? The dysautonomia can develop years before we have motor symptoms causing obvious
movement signs.
The two most helpful tests are
the SynOne test biopsies of skin
and the DAT brain scan to rule out
neurodegenerative disease or offer more specific diagnosis if you need to know with more certainty.