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Anyone stopped taking Repatha after trying?
I experienced stiffness and upper back pain the morning after injecting first dose of Repatha. Began taking Bayer, then Advil, when PCP suggested ibuprofen. On day two, the back pain continued to my shoulder socket and pain increased from about a 3 to about a 6. Today is day four and I am at 6x the recommended dosage of Advil to try and manage the pain. Sent note to PCP this morning that I'm leery about taking a 2nd dose of Repatha and would like to come off of it. Did everyone else soldier on through the 2nd dose? Or tempted to quit but didn't? I injured my back about 12 years ago. It healed with no problems. But the Repatha seems to be hammering at the spot of that old injury. I feel certain it's the Repatha, because nothing else has changed (i.e., not taking any other Rx's, haven't re-injured myself, and was feeling tip-top before the injection). Yoga and ibuprofen aren't having any effect. Sleep has been difficult the last two nights. I can cope okay with the stomach churning and chills; it's the increasing pain and sleeplessness that are wearing me down. If you did quit, can you say roughly how long the Repatha stayed in your system until you felt better? This is the 140 mg/mL dose that you inject twice monthly. On it for high cholesterol of 375 mg/dL.
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This is good advice. However, in my case, I was on the verge of having to go in, be catheterized, and ask for some self catheters. The answer to that is nope. As for stopping the medication for increased pain or something else, it depends on what it's doing to your quality of life. There are people who have gone into adult diapers for the loose stool, and I think another shot or two and that's where I would have been. Again. Nope.
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1 ReactionI am on my second dose and have all the same symptoms that you were having joint pain in my fingers, stiffness stiffness in the neck stiffness in the shoulders the deltoids the biceps right hip back I called my doctor and he told me to stop it and he’s running labs. I was really hoping that this drug would work to lower my LDLC.
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1 ReactionI had & have terrible knee & leg pain. Talked to my doctor today, and stopping it, what would be my 4th shot today. I had Lipitor, 20 mg, a long time, and seemed ok on that but my doctor thought I needed stronger or different med to fight cholesterol. I came on here to look up the half life of the drug, cause still experiencing pain. I am starting to be concerned, that maybe the knee & leg pain could be from something else, but I just stopped it today.
Darn, @ennyl14
I notice other comments around Connect consistent with my doctors advice to stay off Repatha about 3 months. @gloaming posted some good information that may help answer your question. https://www.drugs.com/medical-answers/long-repatha-side-effects-3551518/
I am tagging @mrkoos and @cawiegand because they have mentioned joint and muscle pain possibly from taking Repatha. They may have more information now that more time has passed. Also, @bethrva originally created this discussion and may have more to add.
I am not a medical person, just my own experience taking medications to lower my cholesterol. I took Lipitor since my 20’s until I started having problems about 20 years ago. I believe I’ve tried everything and recently found a combination of drugs that work, and I am even back on Lipitor. I have learned a little bit of several drugs that each work differently seems to work while minimizing side effects. This may be something to ask your doctor.
The best thing you may want to do now is be intentional about lifestyle, super helpful and totally what is within your control. What does your diet and activity look like?
Just curious - what labs is he running?