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CALR exon 9 mutation w/translocation of chromosomes 10 &13
Blood Cancers & Disorders | Last Active: 18 hours ago | Replies (11)Comment receiving replies
So the day after I received my "official" diagnosis (on paper) I had an appointment for my botox injections in my neck for cervicogenic headaches and my neurologist noticed I had a blood clot in my eye, can't even tell you how long it's been since I'd had one of those. Last night I realized I have another another one, what are the chances of having two blood clots in an eye in six months?? Is this "normal" or is this just an (in the tone of my MOM) "Andria you're so weird!" thing??
Replies to "So the day after I received my "official" diagnosis (on paper) I had an appointment for..."
@daelitesmom Just a follow-up question to my last reply https://connect.mayoclinic.org/comment/1457690/
Regarding the blood clots in your eye. You mentioned your neurologist noticed a blood clot in your eye at a previous visit. I’m curious how he discovered this. Did he look into your eye using a Slit lamp or ophthalmoscope? How did you notice you had a 2nd one within 6 months? Did you have a vision disturbance or lose sight in the eye?
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@daelitesmom having blood clots anywhere isn’t ‘normal’. I don’t want to alarm you but it also raises the possibility of a stroke.
Since you’ve been diagnosed with ET (having too many platelets) and you’re only taking baby aspirin at this time to avoid clotting, your hematologist may want to re-examine your treatment plan.
Has your hematologist been notified by you or your neurologist that you have had 2 blood clots in your eyes within 6 months of each other?