skin is extremely sensitive to touch. it. started after Covid

Please look into
Erythromelaglia
It can be primary defective gene SCN9A
Or
Secondary due to medications, food etc
I have been dealing with this for years. You feel like you skin has black and blues on it and it affects mostly feet, legs, arms and hands.
Please look into this because most doctors never think of this due to how rare and the symptoms.
Hopefully you will find some answers.

you may want to have a workup to see if you have long covid...I had tremendous skin issues with long covid until I started on low dose naltrexone and started slathering my skin with colloidal oatmeal lotion.

@itsmeagain
Hi again,
I was saddened to hear your story and am praying for you❤️ I do have so many questions! I have seen two neurologist but because my nerve biopsy and emg came back normal they do not believe it is a problem of neurology. I am wondering if I am just at the beginning stages; a question I did not think to ask at my appointments. Did your tests come back abnormal? When did they decide to do the spinal tap? I do agree that medical science is lacking in helping us:( I am uncertain what has caused this to YOU and I. I did get vaccinated several times and got mild COVID many times as well because I was in the dental field. I was under major stress when it all began too. I was taking care of my best friend, my dad, until his death. I know stress can cause major disfunction but this pain seems to be so much more, it is relentless! Thank you for your kind support🙏 Gentle hugs to you🤗

I have extreme sensitivity in one of my hands so bad that I have to wear a fingerless glove all the time. I did not have Covid but did get the shots and boosters. I have also had burning starting in one leg that started around the vaccinations. Now my whole leg is very weak and felt like it might be neurological. I started going to a rheumatologist who didn’t help and a neurologist that just sent me to a Neuro surgeon who performed an ACDF, which did not help me at all. Many additional symptoms since that are chronic and have affected my living day-to-day so differently. Very sad. Living independently as I always did has gotten difficult. I’ve kind of given up on doctors that have no answers. There’s no diagnosis and no cures for what I feel is auto immune related disease diseases.

I have developed Raynaud's post COVID Vaccine (Pfizer), which is purple or white fingers and toes in response to cold. One year later I was diagnosed with systemic sclerosis, which is skin thickening and vasculitis among other symptoms. I have experienced skin burning and discolorations ever since. My symptoms were considered to be due to Scleroderma or Systemic Sclerosis. But now I see a connection with COVID, and COVID vaccine.

@pal61

I got similar symptoms with skin burning and skin sensitive on touch post COVID-19 Vaccine (Pfizer). The diagnosis was Raynaud's Disease - vasculitis and vasoconstriction which shows as purple or white fingers and toes in response to physical activity and cold. One year later I was diagnosed by Rheumatologist with Scleroderma or Systemic Sclerosis, blood test for SCL-70, which any doctor can order. At the beginning, scleroderma is not obvious, and the diagnosis can be missed, possibly for a couple of years. Many autoimmune diseases start the same. Your symptoms may be due to a different condition. Just sharing my experience.

Hi,

I am seeing a COVID 19 Long specialist at Stanford. a lot of weird things are happening to my body since having COVID. You need to get into a COVID Long specialist. They are have good results with some drugs that have helped me, and they have so much knowledge and have heard everything. I thought I was going crazy until I started going to my COVID doctor.

@topeanut
This will be the 4th time I’ve started this reply. I keep getting interrupted and lose everything.
My nerve conduction test showed severe nerve damage. The nursing home I live in made me do physical therapy but that wasn’t the answer at that stage. I had to fight with them for months to see a neurologist.
Please note I don’t have pain unless someone touches my legs; then I go through the roof.
My discomfort shows in my legs which are tingly, like electric shocks going up and down. And leg swelling.
Finally had the spinal tap in 2022. That determined my CIDP-Chronic Inflammatory Demylinating Polyneuropathy. The demylinating part involves the myelin coating on the nerves has been stripped away leaving them raw, thus the tenderness in my legs.
The nerve damage in my hands makes it difficult to pick up things, to hold on to anything (stuff just slips through my fingers), and dropping things.
But my balance is very bad and I can’t walk without a walker, someone following me with my wheelchair, and a belt around my waist to grab me in case I start to fall.
So my time is spent either in the wheelchair or in bed. And, of course, I tire very easily.
I get experimental Iv treatments (4yrs now) but I seem to have hit a plateau where I’m no longer improving.
My neurologist doesn’t want to give me any of the advertised meds. He’s afraid they might compromise my immunity with disastrous results.
I don’t know if I’ve answered all your questions but I hesitate to move this reply to check what you wrote because I think that’s one way I’ve lost previous answers.
So ask again if you need to.
I wish I could give you solutions but I can’t get them either.
Good luck and bless you.

@itsmeagain
I forgot to note that, even though I can’t prove it, I believe this came from my Covid shot- 2 days after the last one and 10 days after the one before that.
Covid shots have caused all sorts of health problems.

@terlato
Thank you so very much:)