Anyone else have multiple autoimmune diseases?

@77smith77 you are certainly an inspiration!

I think autoimmune diseases must be the worst thing to have as doctors seem to be useless when it comes to putting all of these diseases together and all i know is that i keep getting sicker and sicker without one person being able to tell me where the nexus was for them to start. I feel blessed that at least i am still alive but my lord i just keep getting one after another and they must have spawned from one bad seed. I worked in a hospital lab most of my life and it seems to be that diagnostics have gotten so bad i used to smile at the old show HOUSE as surely someone besides one doctor can diagnose an ailment but boy have things gone from bad to worse. I understand all too well what you are going through and wish you the best-I read where the Mayo Clinic has a division where the try to diagnose undiagnosed ailments so maybe that is something to look into-i know if i get one more thing I am going to hike up there to see if they can help i mean i can't keep going on like this much longer and i know you must feel the same way... Please have a happy holiday in spike of all of this garbage and best wishes for a new year.

@diverdown1
I find your comment about reactivation of EBV to be very compelling. I wish you were a scientist too! This study would encompass the onset of Epstein Barr virus and what? People's lifetime response to trauma/illness. I think a vaccine against EBV would have been a great thing in my life. Instead, my nursing career was a decade instead of decades. I worked in the hospital setting, outpatient oncology, and hospice/home care. Years later I might see a former co-worker, a family member, or a doctor who would ask, what happened to you? Maybe the short answer was Epstein Barr!

@jw9

Hi, I got EBV virus in Feb of 2024. Ever since I have episodes of malaise, fatigue, dizziness, confusion, muscle aches, and red bumps on my skin, mainly on the face and head. Chills, but no fever or night sweats. Recently, I've got episodic nausea in addition to all other symptoms. Does this sound like reactivation of EBV?
What kind of treatment did you receive for EBV?

@altabiznet
I cannot say what it is. For me, reactivation meant fatigue never went away for decades now. I have never heard of red bumps and chills being EBV. I hope you take your own medical history into consideration and talk with your physician.
I don't know about treatment for EBV either. It was a long time ago that I had mono and became ill with the virus. There weren't treatments then. Guess what the only "treatment" was? Bedrest!
I hope there are treatments now for people who are just becoming ill.
I hope you have a visit with your doctor and sort some things out. You deserve healing!

This is my first post on this Autoimmune disease blog. I participate regularly on the PMR blog. My rheumatic/autoimmune experience involves Raynaud's that began in my early teens. I was diagnosed with Graves disease at 30-31 yo, which has been in remission for at least 20 years, without any surgical intervention.
I was recently diagnosed with polymyalgia rheumatica. My 10 mg of prednisone has fully resolved all my PMR symptoms as well as right hand carpal tunnel symptoms! Win-win, so far. Autoimmune/ rheumatic diseases are prevalent on both sides of my family, so I'm not terribly surprised. I pray I'm not surprised by an additional one prior to my journey from this planet!

Autoimmune diseases:?-I have many! I have Multiple Sclerosis, Grave’s disease of the Thyroid, Sjogren’s, Addison’s Disease of the Adrenal gland, some type of arthritis. It seems my body keeps attacking its organs. It’s a battle but there is no alternative other than treating each autoimmune disease.

Sorry you have so much to deal with. My drs have told me I have RA plus muklti other autoimmune they will probably never id. Just live w them including seronegative RA she calls RA as doesnt have blood factor. Do other people have multi auto immune without identity? How does dr treat you? Thank you!

Yes! RA of the hips/spine, axial spondyloarthritis, psoriatic arthritis, and I just spent 18 days in the hospital for the newest: dermatomyositis. Got my first round of IVIG. Happy to be home that’s for sure!

@jimiwho steroids so far are the only thing she tolerates. So many new drugs, biological, but they have lots of side effects