Meningioma just diagnosed

Posted by jdouglassgregory @jdouglassgregory, Nov 7 7:26am

Hello everyone, and thank goodness for this group!

Can a meningioma cause insomnia? Mine was discovered via MRI after a three-day bout of insomnia. I literally fell asleep on feet and face-planted in the wall. May have torn a rotator cuff in the fall, but that's secondary. Recent symptoms that may or may not be associated with my rumor:

--struggle w/balance (feel both down stairs AND up stairs last week
--insomnia and resultant exaustion
--difficullty gettin' off the floor
--forgetfulness
--seeming loss of some physical strength

Thank you!

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Profile picture for doyel @doyel

@mkoch what did they do for yours

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@doyel: I had a craniotomy and they were able to remove all of it without damaging the optic nerve. I had a very easy recovery so always encourage others not to freak out and automatically not even consider brain surgery.

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Profile picture for Dolly Jane @dollyjaneprenzel

@jackie2k
Thanks for letting me know. Encouraging!
At 79, I assume I’ll be dead in a few years anyway! 😊

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@dollyjaneprenzel: You're 79 years young! Thank you for all your validations on my posts/suggestions/opinions.

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Profile picture for Maryann @mkoch

@doyel: I had a craniotomy and they were able to remove all of it without damaging the optic nerve. I had a very easy recovery so always encourage others not to freak out and automatically not even consider brain surgery.

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@mkoch Thanks for the encouragement

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Profile picture for Randy Shields @randallshields56

Thank you for your response.

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Second day back home after a visit with a friend that i have not seen in years but i am back and resting up so i can enjoy getting things back to a normal routine but to be completely open, i had a wonderful time being so far from home and sharing in a different family it was amazing. just wanted to share what getting away for the first time in two years meant to me. completely worth the trip and 6 hour drive. my daughter and daughter in-law .

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Profile picture for doyel @doyel

I see the neurosurgeon for the first time Dec the 10th
Iam a little sared. I have pain in my right eye that comes and goes. It can go for a week or more before it happens. Convince my self it is not coming again but there it is. MY meningioma is 2.1x2.3x2.3 cm they say that's not to big but I'm anxious to find out what they can do. Forgot to tell you I'm 78 years old and have ITP low plattlet count . Please keep me in your prayers and I will do the same.

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@doyel
sending prayers as i type this message------------- sent. Have a blessed day

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Profile picture for Randy Shields @randallshields56

Second day back home after a visit with a friend that i have not seen in years but i am back and resting up so i can enjoy getting things back to a normal routine but to be completely open, i had a wonderful time being so far from home and sharing in a different family it was amazing. just wanted to share what getting away for the first time in two years meant to me. completely worth the trip and 6 hour drive. my daughter and daughter in-law .

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@randallshields56 I'm so happy for you. It sounds like a great adventure.

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Profile picture for dailygift @dailygift

@randallshields56 I'm so happy for you. It sounds like a great adventure.

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@dailygift adventure in this mind of mine would be correct, from daybreak to sundown, totally relaxing and a great visit. rainy was my convoy driver from Iraq when we were there. i was so afraid i wouldn't see him in this lifetime but it all worked out and i had filled a void i didn't know was missing. no cameras or being watched 24/7 my daughter wasn't far away they were on holiday also. but close if i needed them. still felt great being on my own for a while. Thank you for the good wishes.

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I had my first appointment yesterday with a neurosurgeon. He confirmed that I have a meningioma with tails. He feels we can wait and see if it grows or I get more symptoms before we do anything. I have another MRI in 6 months. I was glad to hear this but it is still a little concerning to realize you have a brain tumor. Blessings to all of you that are dealing with many of the same concerns. I will keep you posted. Thank you all for your ongoing support 🙏 ❤️

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Profile picture for doyel @doyel

I had my first appointment yesterday with a neurosurgeon. He confirmed that I have a meningioma with tails. He feels we can wait and see if it grows or I get more symptoms before we do anything. I have another MRI in 6 months. I was glad to hear this but it is still a little concerning to realize you have a brain tumor. Blessings to all of you that are dealing with many of the same concerns. I will keep you posted. Thank you all for your ongoing support 🙏 ❤️

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@doyel
It is disconcerting and I had to force myself to stop “awfulizing” and remember that Jimmy Carter did very well with him brain surgeries and our tumors pale in comparison to his. If he can do it, so can we! Best wishes, and keep us posted! Merry Christmas!
Dolly

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