Meningioma just diagnosed

Posted by jdouglassgregory @jdouglassgregory, Nov 7 7:26am

Hello everyone, and thank goodness for this group!

Can a meningioma cause insomnia? Mine was discovered via MRI after a three-day bout of insomnia. I literally fell asleep on feet and face-planted in the wall. May have torn a rotator cuff in the fall, but that's secondary. Recent symptoms that may or may not be associated with my rumor:

--struggle w/balance (feel both down stairs AND up stairs last week
--insomnia and resultant exaustion
--difficullty gettin' off the floor
--forgetfulness
--seeming loss of some physical strength

Thank you!

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@jdouglassgregory, how are you doing? Have you had a discussion with your neurosurgeon about treatment options?

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I see the neurosurgeon for the first time Dec the 10th
Iam a little sared. I have pain in my right eye that comes and goes. It can go for a week or more before it happens. Convince my self it is not coming again but there it is. MY meningioma is 2.1x2.3x2.3 cm they say that's not to big but I'm anxious to find out what they can do. Forgot to tell you I'm 78 years old and have ITP low plattlet count . Please keep me in your prayers and I will do the same.

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Profile picture for doyel @doyel

I see the neurosurgeon for the first time Dec the 10th
Iam a little sared. I have pain in my right eye that comes and goes. It can go for a week or more before it happens. Convince my self it is not coming again but there it is. MY meningioma is 2.1x2.3x2.3 cm they say that's not to big but I'm anxious to find out what they can do. Forgot to tell you I'm 78 years old and have ITP low plattlet count . Please keep me in your prayers and I will do the same.

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@doyel - you are very wise to see a neurosurgeon immediately! I was very frightened when I was first diagnosed, but we decided to watch and wait. Neurosurgeon does not believe mine is malignant.
I’ll certainly say a prayer for you. Please keep us posted!
Sending hope and blessings. Dolly

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I’ve had insomnia for years. I was just diagnosed with meningioma 2 weeks ago due to a slip on my floor and slammed my cheek. Went to urgent care for CT scan and found 1.8cm meningioma in inferior left lobe with edema. Started steroids and headaches seem to be gone after 2 days. See my first neurosurgeon Wednesday to see what the next step is. My internist seems to think they will want to treat it due to the edema.

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Profile picture for as72 @as72

I’ve had insomnia for years. I was just diagnosed with meningioma 2 weeks ago due to a slip on my floor and slammed my cheek. Went to urgent care for CT scan and found 1.8cm meningioma in inferior left lobe with edema. Started steroids and headaches seem to be gone after 2 days. See my first neurosurgeon Wednesday to see what the next step is. My internist seems to think they will want to treat it due to the edema.

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@as72 praying for you I know it is scary

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Profile picture for Dolly Jane @dollyjaneprenzel

@doyel - you are very wise to see a neurosurgeon immediately! I was very frightened when I was first diagnosed, but we decided to watch and wait. Neurosurgeon does not believe mine is malignant.
I’ll certainly say a prayer for you. Please keep us posted!
Sending hope and blessings. Dolly

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@dollyjaneprenzel I have one outside of my brain and they keep saying they will watch it to see if it keeps growing it’s been about six years now

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Profile picture for jackie2k @jackie2k

@dollyjaneprenzel I have one outside of my brain and they keep saying they will watch it to see if it keeps growing it’s been about six years now

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@jackie2k : I always appreciate success stories with the watch-and-wait approach. Six years and no growth is encouraging for us who are following that protocol.

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Profile picture for doyel @doyel

I see the neurosurgeon for the first time Dec the 10th
Iam a little sared. I have pain in my right eye that comes and goes. It can go for a week or more before it happens. Convince my self it is not coming again but there it is. MY meningioma is 2.1x2.3x2.3 cm they say that's not to big but I'm anxious to find out what they can do. Forgot to tell you I'm 78 years old and have ITP low plattlet count . Please keep me in your prayers and I will do the same.

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@doyel: I had a 2.7 cm. meningioma 1/16th of an inch from my optic nerve. I wonder if your eye pain could be the meningioma is pressing, in some way, on your optic nerve, or another cranial nerve that intersects with your eye. Glad to hear you will get a lot of information when you see the neurosurgeon in 3 days.

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Profile picture for Maryann @mkoch

@doyel: I had a 2.7 cm. meningioma 1/16th of an inch from my optic nerve. I wonder if your eye pain could be the meningioma is pressing, in some way, on your optic nerve, or another cranial nerve that intersects with your eye. Glad to hear you will get a lot of information when you see the neurosurgeon in 3 days.

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@mkoch what did they do for yours

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Profile picture for jackie2k @jackie2k

@dollyjaneprenzel I have one outside of my brain and they keep saying they will watch it to see if it keeps growing it’s been about six years now

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@jackie2k
Thanks for letting me know. Encouraging!
At 79, I assume I’ll be dead in a few years anyway! 😊

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