What are other survivors doing about pancreatic enzymes replacement?

Hello,

I had the whipple and chemo for 6 months.

I would suggest that you stay away from sugar and fatty foods. Also eat small portions. Heathy foods are easier to digest.

Your body will let you know what you can eat without the pain.

Best,

I am on Zenpep as my plan does not approve Creon. I understand that they are the same but manufactured by two different pharmaceutical companies.

Check directly with the pharmaceutal company as they have resources
Good luck

@beachdog

I have not had any problems with the creon. There is another drug called pancrease.

You can get the creon free. Check with AbbVie/pas.com.
Check with your doctor. He can get it for you.

I also found Creon crazy expensive even with insurance covering it. Doctor said there really wasn’t a substitute that would be cheaper. I stayed on for a couple months post surgery but was able to wean off it. Weight stabilized shortly after that , and found I’d lost my taste for most fatty foods so was able to avoid digestive problems.

@jjmacc I have lost my taste too for some foods.

I hope it comes back soon. I just posted a new topic for it.

💜

Starting 2nd year after diagnosis, chemo, rt and whipple. Use 1 creon before each meal. Plan to ask my oncologist at follow-up about cheaper, effective alternatives. Creon works well for me but I start my out of pocket copays again Jan 1.

When something is working at this point it’s very difficult to decide to change . I thank God we live in Canada where the cost of all the drugs and treatment is covered .

Have your doctor get you creon free. Abbvie.com/pas.
You can ask for an application and have them send an application to your doctor.