Rheumatoid Arthritis (RA) - Introduce yourself and meet others
Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
You have RA
Thank You John. That is a start!
Sundance
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@lisaangela Welcome to connect we aren't Drs but help with our experience .With all you have are you under. Dr ,s care ?If not you need to see a rheumatologist Good luck I hope you post again
Hello Lisa @lisaangela, welcome to Connect. I can understand your frustration trying to get a diagnosis and a treatment that helps. There is another discussion here on Connect where your post may receive move visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion.
> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) - Introduce yourself and meet others
-- https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/
I'm not sure if it is an option for you but if it is and you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.
I’m looking for some direction, guidance, info help. So here is my story. I am currently 52 years old. (Female) Up until 2013 I felt healthy, no issues with arthritis etc. I started doing CrossFit in 9/13. (I was 46 years old) I loved doing it, lost weight, felt great, got into great shape. But shortly after startung CrossFit my hips started to hurt. I thought it was just muscle aches etc. kept going. I began limping, pain etc. In 2015 I saw an orthopedic who gave me some injections and suggested I had tendinitis, and arthritis. But the pain just kept getting worse. By 4/16 I decided to see another orthopedic. After X-rays and MRI I found out I had a torn labrum and bone on bone arthritis. I had my first hip replacement in 9/16. Three years after starting CrossFit! In 5/17 I had my second hip replacement. In 5/18 ai could barely use my shoulder, went to the orthopedic, discovered I was totally bone on bone arthritis and I had a total shoulder replacement. Since then slowly all of my joints are being destroyed. Currently I need my right thumb joint replaced. My hands ache horribly. My ankles hurt. My neck hurts. I have radiating pain in different joints at different times. I feel like a mess. I have horrible inflammation in my body everyday. I never knew what inflammation was until 2013. If I do any heavy duty house work or exercise I am in pain for 3 days.Two years ago I found my biological mother. I am adopted. She has had rheumatoid arthritis since she was 30 and encouraged me to see a rheumatologist. She informed me that she has tested serum negative for rheumatoid arthritis all her life, but has the diagnosis and is on meds. I decided to see a rheumatologist last summer. After looking at my records and examining me he informed me that he thought I had severe osteoarthritis. He recommended that I keep taking my anti inflammatory and return of my symptoms worsen. He didn’t test my blood. I felt frustrated and uncertain as to what to do next. I continue to take anti-inflammatory medication but my joints keep getting worse. I also have inflammation in my eyes now. I’m much more tired and overwhelmed. I’ll just add that I have been a counselor for 22 years and do not have a physically stressful job. I sit and talk to my clients. I am completely baffled by what is happening to my body and need some help! Any information Or suggestions would be great! I am considering going to another rheumatologist for a second opinion. Any recommendations in the Buffalo area would be appreciated. Thanks for listening. Lisa
Hi @lisaangela I wanted to join @lioness and @johnbishop in welcoming you to Connect. You may have noticed I moved your message to the group John suggested so that you can connect with others who have similar symptoms.
I also wanted to introduce you to fellow Connect members @kozlo52 @annapocono and @boomerexpert as they all have Rheumatoid Arthritis and may be able to offer you support.
Back to you @lisaangela I think going to another rheumatologist would be a great idea. Have you done any research into other ones in your area?
Thank you so much for your help with the site and introducing me to other contacts. I have been researching rheumatologists in my area. Unfortunately besides reviews on Health Grades I am not finding much info. are the only info. I will message the members you suggested thank you.
I met with a rheumatologist last summer. He viewed all of my x-rays and records from my orthopedics regarding my hip replacements and shoulder replacement. He examined me. Then told me he thought I have severe osteoarthritis because of the joints that are effected. He did not do lab work. He informed me that the anti-inflammatory that I am taking is appropriate. He then said I could continue getting my script from my primary. If my symptoms worsened to give him a call. I was really disappointed. I haven’t been back. Since then both my hands are bad. Now my feet and neck are bothering me everyday. My eyes are super dry. I get fatigued easily and have inflammation every day. Prior to 2013 and doing that intense workout program I never had a problem. Didn’t even know what inflammation felt like. I am in no way wanting to have a diagnosis of RA. But I find it unbelievable that I have this much osteoarthritis at 52 especially considering I have a sedimentary job! Thanks for listening. Any input would be great!
@lisaangela Since it's been over a year can you find another rheumatologist to go to ?