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To continue or stop Venclexta treatment for CLL?
Blood Cancers & Disorders | Last Active: Dec 16 2:22pm | Replies (29)Comment receiving replies
My husband was diagnosed with CLL in 2023 and doctor still did not start treatment even though his WBC is 127 and his Hgb 12.5, he lost 15% of his weight in 6 month.
Doctor is still using watch and wait approach, I don’t know if we should worry that doctor does not start treatment? When did you start.
TYIA
Replies to "My husband was diagnosed with CLL in 2023 and doctor still did not start treatment even..."
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@sveta25 Welcome to Mayo Connect! CLL is a form of leukemia that tends to develop slowly. It’s pretty common for patients to be in active surveillance or ‘watch and wait’ approach. Often doctors defer treatment until absolutely necessary. There is evidence that starting treatment earlier doesn’t benefit the patient.
I found a little information for you from the CLL Society website that discussion when it’s time to treat…
CLL Society CLL: Recognizing when it’s time to treat:
https://cllsociety.org/cll-sll-patient-education-toolkit/recognizing-when-it-is-time-to-treat/
There are also quite a few discussions in the forum with other members who have CLL. Here is one link for you:
Anyone have chronic lymphocytic leukemia? CLL?
https://connect.mayoclinic.org/discussion/anyone-have-cll/
You can find more discussions by typing in CLL or Chronic Lymphocytic leukemia in the top search bar.
Is your husband experiencing symptoms besides the weight loss?