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← Return to HOCM & 8th month on Camzyos...how long will Camzyos work?
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HOCM & 8th month on Camzyos...how long will Camzyos work?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 13, 2025 | Replies (15)Comment receiving replies
@brumasterj Glad to hear the surgery helped and hope he can help you with the sternum. Surgery date Dec 10. I watched a video yesterday with Dr. Dearani, who will be my surgeon, and he comes across like he truly knows his stuff! Hills, stairs, and now being off Camzyos for a weeks has flat surfaces behind an issue. I’m so ready to back to normal.
Question for you. How was sleeping post surgery when you got home? I’m a side sleeper and concerned that I will be struggling to get a good night sleep. Can I lay on my side? It looks like will need to elevate for a few weeks is that true.
Another question, how much walking/exercise have you been doing at home. Should I look to push myself to build up my endurance? Trying to understand what I should focus on?
Appreciate all your insight and hope things go well for you.
Replies to "@brumasterj Glad to hear the surgery helped and hope he can help you with the sternum...."
@mbharris i will be honest with you sleeping is rough for a few weeks but you will get thru it each night and each week. Im a back sleeper occasionally will roll over to side, you will be awakeded for the first few weeks each time you transition, i didnt take any pain medication hate the way it makes me feel.
Walking they want you doing that for sure, you will be up walking the next day after surgery and then building your stamina! Within two weeks i was up to 2 miles, then had to back off plantar fascinates flared up! First 3-4 weeks you will be exausted doing the smallest things so listen to your body and take those naps! Let people help you do things!
Dr Dearani did my surgery and will do my sternal wires next week.
Your gonna love the hospital team, they are the best!
Been 6 months and I still remember there faces and names, unforgettable!
If your married your spouse will feel the same about the team!
Best of luck
And just remember the pain and suffering is short lived but so worth it!!!
Cant wait to hear you out there getting after it again
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@mbharris I slept in a recliner because it kept me on my back and it was easier to rise when I needed to go to the bathroom. Sometimes your best solution comes up through trial and error. You are in good hands!