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New Bronchiectasis diagnosis - need advice

MAC & Bronchiectasis | Last Active: 7 hours ago | Replies (33)

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@mikejj244 You pretty much described me how I was for almost a decade without a diagnosis other than asthma. Very frustrating. Are you getting treatment for the bronchiectasis at one of the Bronchiectasis Centers? You can check to see if your health care facility is on the list. If not, you can search for one closest to you. It is imperative to be get treatment at one of these specialty centers. I read today that Baylor University Medical Center (Dallas) was just added to the list. Also a well known and established center is at UT Tyler. General pulmonologists are just that and typically not up to speed on BE. For example, one of the BE centers would likely induce a sputum sample in office since you have been unable.

Yupelri is a anticholinergic and can be very drying to the lung secretions, which might contribute to your difficulty producing a sample. Before I made it to a specialty center my general pulmonologist wanted me on Spiriva, which is an anticholinergic and made clearing my lungs next to impossible.
https://www.bronchiectasisandntminitiative.org/Find-Care/Care-Center-Network/General-Information
Sue started a thread on the ABCs of bronchiectasis which is chocked full of valuable information, which you can find here. https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/

Here's a shortcut to how to perform a Huff Cough


One of our members demo-ing the nebulizer routine
https://connect.mayoclinic.org/discussion/short-video-on-nebbing-saline/

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Replies to "@mikejj244 You pretty much described me how I was for almost a decade without a diagnosis..."

@scoop Thank you so much for all the good information. I did not realize there were specialty centers. I am currently at University of Texas Southwest in Dallas which is probably the best care center in general in that area. My doctor there supposedly specializes in Bronchiectasis, however, this facility does not appear to be listed. I will have to consider moving to either UT Tyler or Baylor possibly. I would definitely be interested in getting sputum induced so I can finally get an accurate diagnosis and start targeted treatments more quickly. I have been trying to do the sputum collection for months now and am suffering all the while. I may also just quit the Yupelri immediately or taper off to see if that helps. I will be looking at the links you provided etc. to get more education on the subject. If I can get access to the best care and treatments, what improvements are possible given time?