Intrathecal Pain Pump

Posted by duckski44 @duckski44, Jun 21, 2025

I’ve have an intrathecal pain pump for many years, just trying to connect with others that have this device to chat with people about effectiveness and drug therapies.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for morkat @morkat

@heisenberg34
my pump is 20ml; rate per day 0.910mg I think my rate is still on the low side. If I have breakthrough pain I take an Oxycodone tablet. I hope this helps.

Jump to this post

@morkat if you’re on hydromorphone, I would say you are on the low side. I am on about 1.74mg of it per day. Thanks for your reply.

REPLY
Profile picture for heisenberg34 @heisenberg34

@morkat if you’re on hydromorphone, I would say you are on the low side. I am on about 1.74mg of it per day. Thanks for your reply.

Jump to this post

@heisenberg34

The pump is morphine.

REPLY
Profile picture for morkat @morkat

@heisenberg34
my pump is 20ml; rate per day 0.910mg I think my rate is still on the low side. If I have breakthrough pain I take an Oxycodone tablet. I hope this helps.

Jump to this post

@morkat Who prescribes the oxy? Seems as if most Docs shy away from it.

REPLY
Profile picture for heisenberg34 @heisenberg34

@morkat Who prescribes the oxy? Seems as if most Docs shy away from it.

Jump to this post

@heisenberg34 I've been at this for over 20 years. When I began my family doc wrote for me, but pre-pump I had gotten to almost 6 oxycodone's a day that made my family doc nervous so I talked to my neurosurgeon and he agreed to write. Once when he checked the records he said it took you 2 months to refill the last Rx. Certainly not drug seeking behavior. When I had my whole lumbar spine done the hospitalist came in to release me to home. At that time I asked him to cut in half my Rx for oxycontin. He said I want to but you on a billboard the only person in America who wants less Oxycotin. My son who passed from an overdose keep telling me how addictive it was and for some there is no coming back. does that explain it? Hope so.

REPLY
Profile picture for morkat @morkat

@heisenberg34 I've been at this for over 20 years. When I began my family doc wrote for me, but pre-pump I had gotten to almost 6 oxycodone's a day that made my family doc nervous so I talked to my neurosurgeon and he agreed to write. Once when he checked the records he said it took you 2 months to refill the last Rx. Certainly not drug seeking behavior. When I had my whole lumbar spine done the hospitalist came in to release me to home. At that time I asked him to cut in half my Rx for oxycontin. He said I want to but you on a billboard the only person in America who wants less Oxycotin. My son who passed from an overdose keep telling me how addictive it was and for some there is no coming back. does that explain it? Hope so.

Jump to this post

@morkat Thank for your reply. I am truly saddened to hear of your son's passing. I don't know if any doc here in Dover, DE would write scrips for oxy, and I'm not sure I would ever want to get on that train...unless my pain becomes unbearable. For now I will put my hopes on my pain pump being able to reproduce that one day of good pain relief. And, perhaps I will look in THC gummies. I just need to find a doc locally who knows about the various strengths needed to combat neuropathic pain.

REPLY

I don’t know about that. I’ve tried two different brands of CBD gummies but had no effect.

REPLY
Profile picture for bilt4pain @bilt4pain

@heisenberg34 I can answer that about my pump. My doctor was very conservative about dosing. In theory it’s supposed to be micro dosing. Took well over 2 years before I got to some relief which is to get my pain to a 4. And it got there for several years. Now I’m on flex dosing. I get 1.97ml. Continuous, with 4 daily 2.5ml. Per bolus. Right now, after 8 years I’m at 12.1ml. Per day. And it’s keeping me at a 6. When I was on 24 continuous, I had 2 bolus per 24 hour period. I’d use them both. But wasn’t enough. I think my body has acclimated to the morphine and it’s time for a new drug. Maybe hydromorphone or Dilaudid.

Jump to this post

@bilt4pain Do you mean 1.97 mg continuous?

REPLY
Profile picture for sreary74 @sreary74

I don’t know about that. I’ve tried two different brands of CBD gummies but had no effect.

Jump to this post

@sreary74 If CBD doesn't work, perhaps you might try TCH gummies. Of course there might be some side effects.

REPLY
Profile picture for heisenberg34 @heisenberg34

@bilt4pain Do you mean 1.97 mg continuous?

Jump to this post

@heisenberg34
Yes, the pump must never stop. I get 4, 2.5mg. Bolus’s/day with 1.97 mg. Continuous.

REPLY

I am approaching my 3rd pump in March. I've had great results; without it, my level of mobility would be nil.

REPLY
Please sign in or register to post a reply.