Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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@llynch17056

In my opinion because Repatha (Evolocumab) is relativity new, it would be impossible to know extended "long term negative effects".
Doctors are not scientists. They read the data that is provided by the pharmaceutical companies. I have been health conscious most of my life and know my body. I have never had the sensation that Repatha caused in my life. When I told my cardiologist of what I called "mood swings" (not even sure if that is an accurate description) he was baffled as this is not common. Some reports indicate Neurotransmission is affected for some individuals with low cholesterol numbers. Because my cardiologist was so perplexed by what I explained to him makes me more skeptical that no one truly knows how, what, or why long term. Or someone like me with firsthand real/live data/information (I TOOK THE MEDICATION) what better source can you have. The only thing I have been told that this is not widely reported.

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I had a known medication expert tell me that while some side effects are more common, with strong medications, there is no predicting. Too bad he is retired now.

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