Anyone being treated for EF?

Posted by alonzoj1 @alonzoj1, Nov 29, 2025

Interested to see who else has EF and what is their treatment .

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

SusanEllen66 | @SusanEllen66 | Nov 29, 2025

@alonzoj1
Would you please tell us what it is.

alonzoj1 | @alonzoj1 | Nov 29, 2025

In reply to @SusanEllen66 "@alonzoj1 Would you please tell us what it is." + (show)

@SusanEllen66 eosinophilic fasciitis. A rare autoimmune of the fascia.

Helen, Volunteer Mentor | @naturegirl5 | Nov 30, 2025

In reply to @alonzoj1 "@SusanEllen66 eosinophilic fasciitis. A rare autoimmune of the fascia." + (show)

@alonzoj1 May I ask you to share your experience with eosinophilic fasciitis and your treatment? Also, do you have specific questions you would like to ask our members?

alonzoj1 | @alonzoj1 | Nov 30, 2025

I was just diagnosed with a week and half ago! I am on 50mg of prednisone and Azathioprine. So far I don’t see much difference. Wondering if this is normal ? I joined a FB for this disease . One of the things some people had is IV prednisone to start off with. Wondering if I need to have IV to kick start my healing? Also has anyone gone into remission.