← Return to Horrible abdominal Pain- all tests say I am fine but I am not

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Profile picture for anniesezu812 @anniesezu812

This post is to no one in particular but I don't believe i have seen it referenced.
For years after a small abdominal wall injury, which needed surgical repair but which did not happen for 6 yrs ( became a huge medical condition). Long story short, despite recovering from this small surgery i have spent years in crippling extensive abdominal pain, which ultimately traveled to my spine, leading to a spinal cord stimulator (which i shd not have received and that caused whole host of other horrible problems) I am finally after 17 years diagnosed with CELIAC PLEXUS P AIN.
It's a large nerve bundle near the Aorta. You can have scan/ test after test and nothing will EVER show. To the Medical Profession you become a hypercondriac and a plain nuisance, when in fact you suffer very severe, debilitating pain.
I haven't seen anyone mention this, so thought it might be useful to someone one day. I waited 17 years in agony for a diagnosis. The pain is Epigastric, near the sternum, sharp, stabbing , burning etc.
Just a suggestion for those who's tests repeatedly show nothing. It also makes eating painful/ causes bloating, IBS type symptoms.
If you are in PAIN never give up. I have been labeled delusional, paranoid, anxiety riddled, malingering , attention seeker, etc etc.
My pain is REAL, and now im being heard. Best of luck to everyone.

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Replies to "This post is to no one in particular but I don't believe i have seen it..."

@anniesezu812
Yes!!! I used to get about 4-6 months relief from splentic nerve ablation, until other issues took priority. I haven’t found anything else to significantly reduce the pain.