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Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Apr 13 1:54pm | Replies (153)Comment receiving replies
Hi everyone. My 56 yr old husband has been diagnosed with a high grade, 8 cm, fast growing myxofibrosarcoma located at the bottom of his neck, on upper shoulder abutting the brachial plexus. We just completed visits with Vanderbilt team and are meeting with MD Anderson team 1-3 Dec. After much research, chemo does not seem to work on this type of dense tumor. Husband is strongly leaning towards starting radiation then surgery. Does anyone else have/had this type of tumor and location? I would love to hear from you. Thanks
Replies to "Hi everyone. My 56 yr old husband has been diagnosed with a high grade, 8 cm,..."
@tenacgal
My husband also has
myxofibrosarcoma. His is located in the lower extremity. I would love to hear more about what you were advised by Vanderbilt and MD Anderson.
My husband had 26 rounds of radiation and then surgery. He unfortunately had a recurrence 4 years later, followed by 2 more surgeries. He continues to seek a way to stop the recurrences, will be meeting with his med team to discuss options. Would love to hear what others are doing!
What form of treatment did your husband choose?
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Welcome, @tenacgal. To hear that your husband has a fast-growing sarcoma must be very frightening and everything around probably feels like it is moving fast and at the same time, frozen in place.
I moved your post to this related discussion:
- Myxofibrosarcoma: What treatments did you have? https://connect.mayoclinic.org/discussion/myxofibrosarcoma/
I did this so you can easily connect with fellow members like @bailey457 @jonezzi @4me @marshelle @chuck138 @michellebanta @lgshoaf @enver @thompta @lac74 @bethysue @verena @ljt61 @bailey457 @crystald @sallymc @jkrause3 @cherylkolson and others who can share their experiences with myxofibrosarcoma.
How did the meetings go at Vanderbilt and MD Anderson? What treatment did your husband decide upon? How are YOU doing?