@kat260

Blood cancers have been happening forever. ET became a named disease more than a hundred years ago. Yet no one understands why these cancers happen.

My theory is, there are so few of us with ET (or any of the other MPNs) that we mystify our doctors. They don't know what we're going through. This makes it easy to dismiss our symptoms and our stress.

But here, you're among friends. Share your concerns, your fears and your frustrations. We've been through it too.

I don't think HU is on anyone's Christmas list. Who wants to take a medication every day, let alone a chemo drug?

I hated taking my first capsule. But, two years in, HU is protecting my heart and shoring up my bone marrow. It works for me, and for decades it's helped hundreds of thousands of people with sickle cell anemia and oral cancers. I hope you find that a bit reassuring.