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I know I have orthostatic issues low BP where I get dizzy. I still have my Internal Vibrations is what I call them. It’s been since Sept of 2020 that I’ve had mine. My body is shaking all inside me like an earthquake or a hack hammer actually. All the Drs I’ve seen has said it’s a Brain Spinal issue. Not ran into anyone who will tell me the cure. They just say try the Mayo Clinic. But what I’m finding, is that we all complain about it but what’s the solution ? I know there’s gotta be at least 1 of the dozen Drs I’ve seen that knows of this ugh 😩why won’t anyone help me?
I’ve been poked n Scanned n still No one can tell me where these r coming from. It started n my left foot mid sept. 2020 by Oct 1st it was to my knee. By Nov. bamm it shot up both feet n legs to my bra area n that short of time. Only 3 times did I get any relief. Once I had to take antibiotics for bronchitis n had 2 sets of those which made my vibrations stop for 3 weeks. Then 2 other times was an abdominal n knee surgery which lasted 5 weeks to the day 🤷‍♀️only thing I can think of is something n the meds which didn’t work for another yr when I got bronchitis. So why that time. N as that last day I can feel the rumbling in my feet then I know, yep they’re back ugh 😩 this is so aggravating. If we had a swear jar I’d be so rich every time I say “Dang these Vibrations”. I hope some of Y’all having these issues to please share your experience n results. I know there’s gotta be more of me out there. Hugs 🥰 n Prayers 🇺🇸

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Replies to "I know I have orthostatic issues low BP where I get dizzy. I still have my..."

@champton thank you for sharing your experience with it! The response you had to antibiotics quelling the tremors is so interesting! I haven’t had any antibiotics in years, but I’m definitely going to watch for that next time. My BP standing vs laying had only a minor shift, - the doc was expecting more. I count myself lucky in that the carbidopa levadopa IS helping mine. Web search seems to indicate it doesn’t help many with orthostatic. I try to take my first dose about an hour before I get up in the morning. If I forget to take it early, once I am up and about it is not very long before my body lets me know. This is all so puzzling. Guess we are zebras🤣😂. I hope someone can help you get some relief.
Hugs to you!