Vocal cord dysfunction anyone have this?

Randal, thanks for your reply. I’m sorry you have difficulty speaking too.

I have similar voice….was diagnosed as having Presbyphonia… was described to me as “doors to the voice box don’t close”…..!!! No pain, but the more I talk in a conversation the worse the voice gets……and being Italian…you know we love to talk….so that’s my story and I’m sticking’ to it………Cie la vie….!!!!!!!

Thanks bozzardi. It understand it's hard not to talk:)
So you have no pain, just increased hoarseness?
Does anyone develop breathing issues related to this?

yes I do. I will try to speak and nothing comes out.

Similar thing happen to me a week after I was hospitalized for exasperation. My voice was gone for 6 weeks and had to write conversations. I used warm water and salt gargling everyday. My voice came back almost as fast as it stopped....weird experience.

Hi there.....
I have vocal cord dysfunction and my voice becomes very hoarse and raspy....my pulmonologist said that the Zimbus Inhaler I use every day....the powder from the inhaler sticks on my vocal cords and alters my voice. I also take half a low dose antibiotic 3 times a week and so far haven't had any flare up.since I came out of hospital in December.
I just carry on with the meds, cos I don't want to produce phelgm that causes me to cough and raspy all day long. Kind regards Kathy

I’m really sorry you’re going through this – I’m in a very similar position and still desperately looking for some kind of relief myself.

In my case, I’ve been told I have dysfunctional breathing / inducible laryngeal obstruction. Asthma-type treatment just doesn’t touch it. I’ve been on all sorts over the years – blue inhaler, preventer inhalers, antihistamines, nasal sprays, acid reflux medication, etc. I’ve also been given different breathing exercises and “stop cough” techniques by speech and language and other staff. Whether I do them or not, nothing really changes. The pattern is always the same: the meds and exercises don’t stop these episodes or give me any real relief.

My main problem is awful coughing fits that can go on for hours and completely wear me out. I struggle to clear phlegm from the back of my throat – it feels stuck there, so I just keep coughing and coughing but don’t really bring anything up. When it’s bad, I feel light-headed, “not right,” my vision can go fuzzy and I get really scared. It’s hard to think straight, never mind use my phone properly or call for help.

One strange thing is that my daughter has noticed (and I’ve realised it too) that I don’t seem to cough when I’m properly asleep. I usually wake up not coughing, then after I’ve been awake a short time, the coughing starts again. That, plus the fact that asthma meds don’t help, is part of why people have mentioned dysfunctional breathing / laryngeal issues to me rather than “standard” asthma.

I’ve been through ENT, had cameras up my nose and down my throat, tried different breathing and relaxation exercises – still no real improvement. I feel like I’ve tried everything that’s been offered but I’m still in the same boat as you: exhausted, anxious, and desperate for something that actually works.

I’m honestly at the point where I would do almost anything if it meant getting some proper relief from this. It’s the most horrible feeling and medical condition I’ve ever had, and it wears you down mentally as well as physically. I’m in exactly the same position as you – desperate, fed up of nothing working, and just wanting to be able to breathe and live normally again. There has to be something out there that will help people like us, and I really hope we both find someone who will listen properly and take this seriously.

@hellopam my voice changes once in a while too definitely the inhalers and I use nebulizer

@suzyq61 Mine does too. I think it's the Trelegy.

Have you tried oxygen? You have to be able to breathe! Maybe you need a new Dr?