Arteriovenous Malformation (AVM) in brain

https://www.medscape.com/viewarticle/best-us-neurology-and-neurosurgery-hospitals-ranked-2025a1000kaj
I've had a neurosurgeon treating my AVM, right temporal lobe for over ten years. but since I'm very resistant to surgery, he referred me to a neurologist. He works with I had to wait 8 months and this is with the first-hand referral. If you have a great doctor it's only 2 and a 1 weeks.
Because you're not going to get an appointment that quickly over the holidays.
And she started losing her balance relatively quickly, or was it slowly progressive?

Please keep me posted. I'm very interested in hearing what happens. And I hope the very best for you and your family. It's scary.
But most people never know they even have one, because you're born with it. And unless you have an MRI of your brain for some other reason, it might go unnoticed, and if you have a stroke because of it, it could still go unfounded.. There's been very little research on this condition.
It's getting more attention but not enough.

@malmor
Thanks for the reply. My wife has an appointment for Mid January with a Neurologist. If we are willing to drive 2 hours we can have an appointment in a couple of weeks. I'm thinking we'll go to the one in a couple of weeks for a review of her situation and keep the one in January for treatment as that Neurologist is only 15 minutes from us.

@beauclaird1 i would do the exact same thing because I've seen several neurologists and regardless of where they got their education. And what hospitals they've worked in some doctors are good and others got through medical school. Because they had to memorize but they can't walk talk. And chew gum, they just can't connect the dots, so keep all the appointments and you keep going until you get the answers. Because if you don't fight for you, nobody else is going to your wife is very lucky that she has you as her advocate

I'm gonna tell you a very scary story.My doctor sent me 4 an MRI...the order clearly stated AVM right temporal lobe. since it first appeared in 2008I was in a car. Accident, and they did a scan to see if I had a concussion. I've been going every other year to monitor the growth. I go for the MRI with and without contrast, I put all my records with me for comparison. I tried to give them to 3 separate people.Nobody would take them. the radiologist's report came back nothing there. All clear you're born with an a vm. They don't go away. I get back in my car now with my reports. I drove a 1000 miles an hour to this hospital. Where I had it done? And I go ballistic, and they try to tell me well, he's not a neurologist. I said, yes, but he's the radiologist that are reading everybody scans in this hospital. They said, well, the neurologist is on vacation. He'll be back next week. The following week, I get my new modified report and it sounded very familiar.I pull up my old reports, and it was verbatim word for word a report from 2013. it turns out either equipment failure or incompetence of positioning me on the table. It never appeared on the scan This is a major hospital in Palm Beach County. Florida. How many people have tumors in their head? And they're getting a report that states all clear
Talk about scary.
Thank God I knew better! like they say you come to Florida to die. I also had several other tests on there. Scans lungs, heart.
Carotid arteries, I can't trust one of those tests.
So I went back to mike neurosurgeon in Miami, had to redo all the scans, thank God. The AVM did not grow, and then I had to wait 8 months to see a neurophysiologist, and I'd been his patient over 10 years. If that's not outrageous, I don't know what is.

My son 16 yes old has avm on the right side of his brain. He did exercise in his left hand which is weak and not long after ha had a seizure can their be a connection between the exercise and the seizure

@juda - welcome to Mayo Clinic Connect. I'm sorry to hear about this seizure your son experienced.

You'll note I moved your post to this discussion where others were talking about AVM so they can chime in on whether they have seen, read about or been told by a physician that exercise can lead to a patient with an AVM experiencing a seizure:

- Arteriovenous Malformation (AVM) in brain. https://connect.mayoclinic.org/discussion/arteriovenous-malformation-avm-in-brain/

Please meet @malmor @beauclaird1 as well as @anntom @sasham who have talked about AVM elsewhere on Connect. @foundryrat743 also may have some thoughts for you.

When was the AVM discovered? What led to its discovery?

@juda - I also wanted to introduce you to @santosha, who may have thoughts on the exercise performed by your son who has an AVM and the seizure he experienced.

May I ask how old you are? I'm 63 and I've just been diagnosed with AVM. Greetings from Vienna, Austria.

@lisalucier
Thank you for bringing me into this discussion!
@juda I have epilepsy myself and exercise daily - whether it's walking, playing tennis, or doing Pilates. Regular physical activity is actually known to potentially improve seizure control and reduce some side effects of anti-seizure medications. So I really doubt that your son's exercise with his left hand triggered this seizure.
I'm not a doctor, but I suspect something else may have triggered this seizure. A few questions: Did he experience any stress that day or the day before? How was his sleep? Both stress and poor sleep are well-known seizure triggers. Also, was anything changed in his medication before this seizure occurred?
If I understand correctly, this was his first seizure? That must have been quite frightening for both of you.
I'm sharing an article from the Epilepsy Foundation that covers common triggers - you might find it helpful as you and your son start identifying what to watch for:
Seizure Triggers - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-triggers
Sending strength your way!
Chris