← Return to Arteriovenous Malformation in brain - which Mayo location to visit?

Discussion
Comment receiving replies
Profile picture for malmor @malmor

I'm gonna tell you a very scary story.My doctor sent me 4 an MRI...the order clearly stated AVM right temporal lobe. since it first appeared in 2008I was in a car. Accident, and they did a scan to see if I had a concussion. I've been going every other year to monitor the growth. I go for the MRI with and without contrast, I put all my records with me for comparison. I tried to give them to 3 separate people.Nobody would take them. the radiologist's report came back nothing there. All clear you're born with an a vm. They don't go away. I get back in my car now with my reports. I drove a 1000 miles an hour to this hospital. Where I had it done? And I go ballistic, and they try to tell me well, he's not a neurologist. I said, yes, but he's the radiologist that are reading everybody scans in this hospital. They said, well, the neurologist is on vacation. He'll be back next week. The following week, I get my new modified report and it sounded very familiar.I pull up my old reports, and it was verbatim word for word a report from 2013. it turns out either equipment failure or incompetence of positioning me on the table. It never appeared on the scan This is a major hospital in Palm Beach County. Florida. How many people have tumors in their head? And they're getting a report that states all clear
Talk about scary.
Thank God I knew better! like they say you come to Florida to die. I also had several other tests on there. Scans lungs, heart.
Carotid arteries, I can't trust one of those tests.
So I went back to mike neurosurgeon in Miami, had to redo all the scans, thank God. The AVM did not grow, and then I had to wait 8 months to see a neurophysiologist, and I'd been his patient over 10 years. If that's not outrageous, I don't know what is.

Jump to this post


Replies to "I'm gonna tell you a very scary story.My doctor sent me 4 an MRI...the order clearly..."

May I ask how old you are? I'm 63 and I've just been diagnosed with AVM. Greetings from Vienna, Austria.