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Facial/temporal and ear spasms, tinnitus, vertigo, pain. Please help

Posted by megtalleywright @megtalleywright, Jan 19 4:01am

I have been of every doctor, ENT, neurologist, I am in such a state of distress.

4 months ago I began getting a vice grip feeling right above my ears. Then I began getting bouts of tinnitus. Then the vice grip progressed to my nose and jaw.

Over time the tinnitus has gotten louder and more unstable, lots of beeps and hissing and buzzing and ringing that seems to fluctuate with the muscles in my face. I also began getting spasms right above my ears and maybe my actual ears as well.

I seem to be worsening every week and my ENT just says I’m fine.

Can anyone help me? I have a 4yo who needs his mom back.

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megtalleywright | @megtalleywright | Nov 18 5:56pm
In reply to @jimjohnp "Hi, really hoping @megtalleywright is still active because this sounds exactly like what's happening to me..." + (show)
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Hi, really hoping @megtalleywright is still active because this sounds exactly like what's happening to me (vice grip in ears, tinnitus that fluctuates with face muscles)

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@jimjohnp hi Jim, my issue ended up being hyperacusis I believe. Getting away from sounds like the ac unit, cars, fans, stopped the pain within a week, but it really sucks to be in quiet with tinnitus

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jimjohnp | @jimjohnp | 6 days ago
In reply to @megtalleywright "@jimjohnp hi Jim, my issue ended up being hyperacusis I believe. Getting away from sounds like..." + (show)
Profile picture for megtalleywright @megtalleywright

@jimjohnp hi Jim, my issue ended up being hyperacusis I believe. Getting away from sounds like the ac unit, cars, fans, stopped the pain within a week, but it really sucks to be in quiet with tinnitus

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@megtalleywright tysm for responding, what happened with the vice grip feeling and spasming? What treatment did you get?

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