How do I handle the mood changes caused by glioblastoma?

Posted by susanbruckel @susanbruckel, Nov 16 3:40pm

How do I handle the mood issues. I try to not ask questions or even talk about anything that can set him off

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Hello,
I went through the same issue. I was given seizure medication to take after my glioblastoma was discovered and the necessary procedures were done. After 2 weeks I told my doctors that I refused to take the medication that they wanted me to take for the potential seizures as it put me in the same situation/mood he may be experiencing. My doctors changed the medication, and I have not had any issues since and this was over 2 years ago.
Don't hesitate to reach out to the doctors for any and all issues he may be having.
Sjt

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@susanbruckel, this is challenging to deal with. My father-in-law faced a similar situation with his wife when she was diagnosed with a glioblastoma. Not everyone who living with a brain tumour will experience personality changes. As a brain tumour grows, it can put pressure on the healthy brain cells around it. This can affect the function, process or part of the body controlled by that area of the brain.

Personality changes are most common when a tumour is located in the frontal lobe, which controls personality and emotions.

Sometimes the moods may come from the stress and fears of being diagnosed with cancer.

Do you know if his mood changes are from the brain tumor growth or swelling? Or are they from stress? Knowing this may change how you approach dealing with the changes.

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Profile picture for sjt10323 @sjt10323

Hello,
I went through the same issue. I was given seizure medication to take after my glioblastoma was discovered and the necessary procedures were done. After 2 weeks I told my doctors that I refused to take the medication that they wanted me to take for the potential seizures as it put me in the same situation/mood he may be experiencing. My doctors changed the medication, and I have not had any issues since and this was over 2 years ago.
Don't hesitate to reach out to the doctors for any and all issues he may be having.
Sjt

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@sjt10323
Hi there, my husband is taking the generic Levetiracetam 500 mg tablet twice a day (instead of Keppra) and it makes him very irritable. Did you switch to a different medication than this? He’s talking to his nurse about alternatives. Thank you.

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Profile picture for stucker9755 @stucker9755

@sjt10323
Hi there, my husband is taking the generic Levetiracetam 500 mg tablet twice a day (instead of Keppra) and it makes him very irritable. Did you switch to a different medication than this? He’s talking to his nurse about alternatives. Thank you.

Jump to this post

@stucker9755 Yes, that is what they gave me when I first started. They changed it to Briviact after I refused my initial prescription. Why Briviact is so expensive, I do not know. Perhaps it is because a patient does do much better with Briviat. My initial oncologist said they did not prescribe it because it "might not be covered" with my insurance company.
I wish your husband good luck on a change that will help him feel better.

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