Post viral syndrome peripheral nerve hyperexcitability

Not sure if you’ll see this since it’s been months since last post, but I wanted to say thank you for posting this. I am going through a very similar situation and this has helped me to not feel so alone. Strangely, I also developed the symptoms after getting sick 4 times in less than two months… and I have a 14 month old. There is something about adults getting sick from the viruses that our children contract that seems to be a common thread here! Tingling, burning, hot/cold, muscle spasms. Worse when at rest. Moves around between left arm, left leg, and right leg. Tests all came back normal except for slightly elevated ANA, but that’s unrelated since I have had iritis on and off since childhood. Anxiety has been through the roof since having a baby and not getting sufficient sleep (she is a poor sleeper.) Managing with supplements, herbs, good diet, cutting back on alcohol, mindfulness, therapy, and nervous system regulation tools. I’m not a medical professional but my dad was ER doc for 30+ years, mom is PA, step mom is RN, grandma was nurse as well. Maybe that’s where my health anxiety comes from. I easily panic when it comes to internal signals and think I’m going to die. Been a struggle since late teens!

Welcome @rubyblu89, Thank you for sharing your experience. I'm happy to see that you now know that you are not alone and are able to relate to @josh701 who started this discussion. Like @josh701 it sounds like you have found a way to stay positive and manage the symptoms. Did your doctors find any possible causes for your symptoms?

@rubyblu89 hang in there. Symptoms are still evolving for myself but again functional strength stays intact. The fasiculations are probably the hardest symptom for me to ignore are my health anxiety spikes. I belive I have a form of benign fasiculation syndrome which can have sensory components. I am scheduled to see a neuromuscular specialist in 3 months. Hopefully I can get some closure to this and move on with my life as this has been taxing.

@johnbishop My PCP didn’t seem concerned after doing neurological tests and getting blood work back. He said to follow up in a few months and we can re-test to see if anything changes, or to come back if symptoms get worse. I need referral to see neurologist or rheumatologist, and he didn’t think I needed one. I have had iritis on and off my whole life so there is an underlying autoimmune issue, but I think the nerve stuff is new and unrelated since it happened suddenly after sicknesses.

@josh701 Thank you for the follow-up! I also hope you get some resolution. So good to know that whatever is happening is benign and there is no real nerve damage happening. For me it’s a battle with my mind/anxiety. Interestingly, a few weeks ago I had two very relaxing days with no stress. The symptoms almost completely disappeared. Then, the next day I went to ER because my WBC was over 16,000 and my mom convinced me that I needed to go to make sure there wasn’t something serious. Everything was fine, but the symptoms came back with a vengeance after that and haven’t dissipated (I was freaking out the whole time in ER.) That was 3 weeks ago. So I can see there is a direct correlation between stress and symptom severity. But it’s the hardest thing because you’re caught in a loop of body sensations -> thoughts -> more intense body sensations. I have been seeing naturopathic doctor as well and just started acupuncture. I also have been doing nervous system training, directly working with the nervous system to “re-train” it. If curious, I can follow up!