Post viral syndrome peripheral nerve hyperexcitability

Posted by josh701 @josh701, Apr 6 9:51am

Hi everyone,
I’m a 36-year-old navigating recovery from what’s been described as post-viral small fiber involvement and motor nerve hyperexcitability.

How It Began:

It started after a viral illness in August 2024, during a time when my whole family had upper respiratory symptoms.

I developed fever, diffuse headache, and left-sided temple pain, which later localized and became persistent.

By January 2025, I began to experience:

Burning sensations

Pins and needles

Odd wet or sunburn-like skin feelings

Muscle fasciculations (twitches) across my body

Migratory muscle pain and intermittent joint discomfort

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Workup So Far:

MRI of brain and cervical spine: Normal

Autoimmune workup: Negative

Skin biopsy: Normal epidermal nerve fiber density

Nerve conduction studies & EMG (lower extremities): Normal

CBC, CMP, CRP, ESR, CK, aldolase, B12: All normal

No evidence of large fiber neuropathy or motor neuron disease

No clinical weakness or atrophy

---

Current Working Diagnosis:

Post-viral small fiber sensitization

Motor nerve hyperexcitability (likely benign fasciculation syndrome or similar)

Significant health anxiety, especially due to my medical background and profession

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What’s Helping Me:

Gabapentin (600 mg at night)

Supplements:

Magnesium glycinate

CoQ10

Alpha-lipoic acid (ALA)

Omega-3

Curcumin

B-complex

Vitamin D3 + K2

Ashwagandha, glycine, apigenin (for calming and sleep)

Exercise: Strength remains intact and working out reinforces my confidence

Mind-body tools:

Headspace and Curable app

Weekly visits with a psychologist

Gratitude journaling

Somatic calming techniques (breathing, grounding, mantra work)

New mantra I use daily:

> “One in a million. I am strong. This will pass.”

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Biggest Lessons:

Even with scary symptoms like widespread twitching or burning, the body can be in a state of hyperawareness, not disease.

I’ve learned the importance of regulating fear and stress to support nervous system healing.

Benign doesn’t mean painless—but it does mean hopeful.

Working with a neurologist, psychologist, and staying grounded in scientific reasoning has helped me reclaim my peace.

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Happy to connect with anyone navigating something similar. You're not alone—and your body is capable of calming, rewiring, and healing.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@daj3333

Do you mind telling us what ballpark timeframe you were given for recovery?

Jump to this post

No concrete time table. He said months to years... I'm mentally preparing for this is just my new norm. As long as things don't progress I am happy I am complete function and can sleep at night with the help of medication.

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