Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 @nannybb I will be enjoying the rain after it passes @californiazebra. I live one state east of her in southern Arizona. We get even less rain. Here is an example of why it is easy to get valley fever from breathing in soil spores where I live:
Source: YouTube https://share.google/cq6iVq98aLbmq53lH

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@tomrennie
Yes, you’re in more of a desert climate than I am. I’m only a few miles from the coast so pretty great weather with fresh air all year around, just not enough rain. I remember seeing that Haboob on the news. Gross. I can hardly breathe just looking at it. How often does that happen? You also get the occasion monsoon with lightning that fills the sky. I would enjoy the lightening. It’s been raining steady for the past few hours, but no wind or lightning. Just right. I hope the rain makes it to you without fizzling out.

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Profile picture for jessie1990 @jessie1990

@nannybb did they no it was typical before they went in to remove it

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@jessie1990 The biopsy was difficult to understand. I asked the doctor and he said "it is still cancer". When doing research, I found the best thing to do was to operate. The pulmonary doctor agreed. Looking back, I should have gone for a second opinion.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 @nannybb I will be enjoying the rain after it passes @californiazebra. I live one state east of her in southern Arizona. We get even less rain. Here is an example of why it is easy to get valley fever from breathing in soil spores where I live:
Source: YouTube https://share.google/cq6iVq98aLbmq53lH

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@tomrennie That is amazing
I hope this does not happen often. I would imagine there would be a lot of dust on everything, not to mention your lungs.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@nannybb That is awesome. Progress is hopefully being made. Sometimes the squeaky wheel is the one that gets grease. Squeaking loudly usually helps. Good luck with the MRI. Hopefully the results will explain some things.

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@tomrennie Man I hope so. I really really need to go back to work....and I'm tired of the constant pain. Thanks for the encouragement. Means alot.

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Profile picture for nannybb @nannybb

@jessie1990 The biopsy was difficult to understand. I asked the doctor and he said "it is still cancer". When doing research, I found the best thing to do was to operate. The pulmonary doctor agreed. Looking back, I should have gone for a second opinion.

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@nannybb yes my pulmonary doctor said the same to me about surgery also

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Profile picture for jessie1990 @jessie1990

@nannybb yes my pulmonary doctor said the same to me about surgery also

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@jessie1990 How did that make you feel? Personally. I WANTD to believe it eas a confirmation, but now I'm not so sure.

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Profile picture for nannybb @nannybb

@jessie1990 How did that make you feel? Personally. I WANTD to believe it eas a confirmation, but now I'm not so sure.

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@nannybb I really thought the first procedure would of worked but it didn't 🥹 now I need more and been giving the pros and cons is kinda freaking me out abit

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I can totally see why. It's very difficult to see clarity when you don't (at least I don't) have much faith in the medical community as a whole. When I was getting my training, 100 years ago, I felt most of the time I was around people who cared. I have been rethinking that. I thought about a pt. that was in a wheelchair near the nurses station, definitely distressed. These were all seasoned nurses. They had been in clinic much longer than I had. But, maybe because I had been hospitalized so many times, I saw her distress. I asked if she wanted to be in a exam room right away. Turns out she had just come from chemo and was horribly sick. She unwrapped her scarf. She was so sick, she felt no embarrassment. I offered her ice chips. Was anything I did a big deal? Nope. But my point is, we are all people who need to be seen and heard. We need to know our options and be given truthful facts about outcomes. I hope compassion starts to return, and striving for profits diminish. I just want to have someone care and from that, offer honest help. Not trying to be sanctimonious. I'm just tired....like many other in here.

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Profile picture for nannybb @nannybb

I can totally see why. It's very difficult to see clarity when you don't (at least I don't) have much faith in the medical community as a whole. When I was getting my training, 100 years ago, I felt most of the time I was around people who cared. I have been rethinking that. I thought about a pt. that was in a wheelchair near the nurses station, definitely distressed. These were all seasoned nurses. They had been in clinic much longer than I had. But, maybe because I had been hospitalized so many times, I saw her distress. I asked if she wanted to be in a exam room right away. Turns out she had just come from chemo and was horribly sick. She unwrapped her scarf. She was so sick, she felt no embarrassment. I offered her ice chips. Was anything I did a big deal? Nope. But my point is, we are all people who need to be seen and heard. We need to know our options and be given truthful facts about outcomes. I hope compassion starts to return, and striving for profits diminish. I just want to have someone care and from that, offer honest help. Not trying to be sanctimonious. I'm just tired....like many other in here.

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@nannybb 100% totally agree health system here is a disaster also like I've been told in July I've a tumor I've half some of it removed in Sept and noting since then just waiting on surgery now been told don't worry about the half that was removed growing back as these tumors are very slow growing that is not maken me feel better i want it gone and was expecting it to be gone back in July not nearly 5 months after I was diagnosed

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Profile picture for jessie1990 @jessie1990

@tomrennie omg that is so scary 😱 I thought we were bad back here in Ireland with heavy down pours of rain and floods

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@jessie1990 we get them a few times a summer usually followed with storms.

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