Has anyone been diagnosed with Central Pain Amplification?

Hello @sue15, Did you happen to see the video in the first post of the Central sensitization syndrome and treatment? discussion shared by @rwinney? - https://connect.mayoclinic.org/comment/1043858/. Rachel also shared another discussion where members have shared their experience below the video. Just wondering if it might be helpful.

No, I will check it out! Thank you!

Hi @sue15. I'm real sorry you continue to struggle with chronic pain . Sadly when no one, meaning the medical world, can explain pain and the obvious concerns have been ruled out through testing, it generally boils down to Central Sensitization Syndrome AKA generalized pain stemming from peripheral and central nervous system malfunctions. It's a hard diagnosis to accept at first but the more you learn about it the more it will make sense to you.

Please read through the link @johnbishop reference above which is filled with good insight to pain amplification.

Perhaps working with a physical therapist who can teach you an exercise program using modification and moderation to help build up strength would be helpful. No matter how bad we hurt we have to move our bodies to prevent further deconditioning. Motion is lotion, my friend.

Have you worked with physical and/or occupational therapy yet?

@sue15
What have you been officially diagnosed with and what treatments/medications are you receiving today?

Have you been seen by a neurologist, immunologist and endocrinologist? Have you had EMG/nerve conduction studies, small fiber neuropathy skin punch biopsy, thyroid full blood panel, iron full blood panel, allergy testing, etc.?

Have you had MRIs of your cervical and lumbar spine?

@rwinney yes, quite a few pt’s and one occupationist for my hands. I appreciate your input. I do move a lot and even travelled recently but it’s those high pain days that are hard.

I would certainly be up for doing daily exercises if I could be assured they were actually helping me. Whenever I am doing any kind of exercises, my pain level ramps up even more. I would love to walk, but every step I take is excruciating. Very unpleasant. Maybe medical marijuana would help. Who knows. Five years ago I was skiing, biking 40 to 50 miles a week, etc. Now, I'm lucky to get 300 steps in a day. May you all have a blessed day!

@heisenberg34
I can so relate. 5 years ago I was healthy, biking, hiking, swimming which I so enjoy. I’m thankful I can walk my dog or walk by myself but legs are getting weaker. I say prayers for everyone on this Mayo connect.🙏🍁

Sue15 ..
I haven't heard of this diagnosis, nor have I been diagnosed with centralized nerve syndrome but am sure I have it.
Am diagnosed with severe CRPS which gets worse over time. I dont have symptoms similar to yours but doexperience new/ bizzare pains daily. No real explanation for them but removal of SCS 3 months ago probably further irritated my nerves.
I have found some holistic help, unfortunately im not well enough for PT or exercise, wish I was.
I have done great research on holistic healing, too lengthy to share here...I could email you if you'd like. Its not quick fix or magic bullet but its giving me hope where I had none.
Take care!

❤️

@anniesezu812
Interesting. How did they diagnose you with CRPS? I may have that. My pain specialist diagnosed it but I think there is a more definitive diagnosis. I have heard of holistic healing and try to incorporate it in my life. I was told to go to the Mayo Clinic. Thanks for listening.