Has anyone been diagnosed with Central Pain Amplification?

@heisenberg34
I can so relate. 5 years ago I was healthy, biking, hiking, swimming which I so enjoy. I’m thankful I can walk my dog or walk by myself but legs are getting weaker. I say prayers for everyone on this Mayo connect.🙏🍁

Sue15 ..
I haven't heard of this diagnosis, nor have I been diagnosed with centralized nerve syndrome but am sure I have it.
Am diagnosed with severe CRPS which gets worse over time. I dont have symptoms similar to yours but doexperience new/ bizzare pains daily. No real explanation for them but removal of SCS 3 months ago probably further irritated my nerves.
I have found some holistic help, unfortunately im not well enough for PT or exercise, wish I was.
I have done great research on holistic healing, too lengthy to share here...I could email you if you'd like. Its not quick fix or magic bullet but its giving me hope where I had none.
Take care!

❤️

@anniesezu812
Interesting. How did they diagnose you with CRPS? I may have that. My pain specialist diagnosed it but I think there is a more definitive diagnosis. I have heard of holistic healing and try to incorporate it in my life. I was told to go to the Mayo Clinic. Thanks for listening.

@anniesezu812
What is SCS?

@dlydailyhope
I’ve had MRI’s of my cervical and lumber spine. I have degeneration in lower back. I have not have skin biopsy or seen an endocrinologist or immunologist or had those specific blood panels. I’ve had a lot of blood work done.

@sue15 Spinal Cord Stimulator.

@sue15 going to try to PM you. A lot to write🙄🙄.
Aren't we all !!

@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.

Thank you dearly for sharing in detail your story. I’ve heard of Dr. Sarno-I have to look up TMS. You have been through so much and at the mercy of doctors for so long. I’m so sorry. Yes, I’m the lady who feels like I’m dying. I’m seeing a new counselor who I think will be good for me. Is Xanax a prescription? Thank you for confiding in me😉.