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Has anyone been diagnosed with POEMS syndrome?
Blood Cancers & Disorders | Last Active: Nov 28 3:48pm | Replies (23)Comment receiving replies
@cat59 Technically no,here where I got my treatment they believe in upfront transplant and it was amazing,now almost 16 months post transplant Iam able to resume lot of activities of normal life other than running,still have to use foot braces though.
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@mak21 I'm so happy for your recovery. I wish I had that option when I was first diagnosed. I'm going to research to see if it's to late to try it now! Keeping my fingers crossed that I can at least try it! Thanks for sharing your results, it means a lot.