Endometrial cancer at a late age

@alohman08 You're scaring me more and more; we're too much alike. That means the things I hoped were in my favor to avoid a recurrence, are really not. My ca125 was 6, so I saw that as a sign that the cancer had not yet gone beyond the uterus. But yours was just 10, and it had gone beyond the uterus (resulting in recurrence). I have so much mental fatigue. Everytime I think I have it figured out, I find that I don't.

@inquirer I was told that my cancer did NOT go beyond the uterus.. I was told that with my kind of cancer there was a great chance of recurrence.. that it was treatable NOT curable .. I did everything within my control to stay healthy with lots of exercise healthy diet and weight and good sleep .. and very positive attitude.. I hoped the cancer would not come back but knew that it might .. I was sort of prepared.. I'm very proactive and question everything that might feel weird .. as I did with the bloating that occurred 18 months after chemo .. I don't assume that what I'm being told is the gospel .. so far I'm alive and doing well and although I don't like being on a treatment with no real end in sight .. I take things one day, treatment, scan at a time .. I'm really sorry that what I reported scared you .. I forget that not everyone reacts as do.

@alohman08 No apology necessary. It's a wake-up call for me. My doctors believe that although my cancer can return, it's unlikely. I was taking comfort in that, but your case reminds me to keep my guard up and that could be life saving for me. I rely more on what I read in these forums (our reality!) than I do on given statistics. So thank you for this!

@alohman08 What is your age. I am 80 and put off treatments as my ct scan came back no metastases. I am conflicted because of my age. I had complete hysterectomy with one node with cancer and four nodes removed for testing and they were cancer free. Chemo scares me but I want to live. I have 9 great grandchildren and a very supported family, but they won't all say get the treatments. The other say yes and some say it is MY decision so I am trying to decide my surgery was July 9 25 and the believe they got it all except that they don't see those microscopic particles well. My Father pancreatic cancer and Brother had colon cancer both had chemo my Father died after three months at 60 but, my brother died of a different cancer, liver, 9 years later at 68 I'm going for my follow up tomorrow and I am getting over a cold or flu . I started with two days of complete laryngitis on the 23 of October. Regular Dr gave no diagnosis as I had no congestion or fever but eye infection, and mild sore throat so gave meds for my eye. Checked for strep came back negative, which is the only thing left is sore throat and cough. I have an appointment tomorrow, so calling the oncologist to see if he wants to cancel. I know God is with me but feel guilty cause he has given me such a long life, but I want to live a little longer. I so appreciate this site and all of you who care to comment and share, Bless You!

@greatgrandma2025 Good morning...I'm sorry that you are going through this journey it sucks at any age ! I am a very healthy 77 year old I'll be 78 in early January. Considered the the picture of goods health forever until....April of 2021 when I was diagnosed witb this rare aggressive cancer...total shock !!! But I'm very strong and a take care of kind of person so I fast tracked everything....The term aggressive really got me !! I questioned starting chemo as a preventive treatment even though my cancer was discovered very early at a stage 1A just a small spec in uterus...Surgeon said it was not necessary so I listened....when I had the recurrence is wasnt a question for me I want to live and if chemo was the best treatment I didn't think twice....I believed that I would tolerate it well because I am in excellent condition as a result of living a very healthy lifestyle for many many years....lots of exercise plant based diet with addition of fish great sleep ( just lucky ). also fabulous loving family and friends. All this being said I was not very apprehensive about being treated with chemo...I just wanted to kill the cancer and it did and other than losing my hair which wasn't pleasant, but I had a great wig that no one was a wig ! I had pretty normal energy no nausea not much appetitie I lost 15 lbs which I gained back quickly when chemo ended. I have heard that many people have a hard time wiht side effects but I have also spoken to people who like me ...tolerated it well. Obviously your decision, If you trust your doctors and of course you want to live it may the only option to prolong your life. Why are they suggesting chemo if your scans are good ? That sounds odd to me...What kind of uterine cancer do you have ? is it Sereus carcinoma, sarcoma ? I didn't have chemo until my recurrence...18 months after having had perfect scans clear MRI. go figure ?? I wish you luck and strength and getting over your nasty infection?! 80 years old is NOT old in my opinion...I plan to live into my 90's I want to be around to watch my 4 grandkids grow up !

Also diagnosed with endometrial cancer. Had hystrectomy with sentinel lymph nodes (clear).Stage 1A no chemo ...Dr mentioned radiation to vagina, Anybody have radiation???? how much? effects?

Hi 1995victoria- I was diagnosed with endometrial adenocarcinoma cancer had radical hysterectomy Oct 2024 stage 1A grade 2 lymph nodes were clear. Oncologist recommended 4 internal radiation (brachytherapy) treatments, which I had twice a week for 2 weeks. I did not have any side effects. I’ve been using a dilator 2 times a week to prevent vaginal stenosis. I have been NED ( no evidence of disease), keep praying I stay NED.
Wishing you all the best

@paz1956 Thank you for the good information. I have post-op appointment this week.....I'm still recovering from surgery.

@1995victoria After surgery your oncologist recommended radiation to the vagina (brachytherapy)? Did the oncologist say where in the vagina? To the vaginal cuff (assuming your cervix was also removed)?

While we may have similar diagnoses here many of us receive different recommendations from our oncologists I was diagnosed in 2019 with endometrial cancer (endometrioid adenocarcinoma), FIGO Grade 1. Like you I had sentinel node biopsies and they were clear. Pathology staged me Stage 1a. At follow-up my gyn-oncologist said no adjuvant (radiation or chemotherapy) was needed or recommended. She gave me a cancer survival plan with all of my information including how often I should return for follow-up appointments referred to as "cancer surveillance".

Did your oncologist tell you why they recommended brachytherapy? At your follow-up appointment this week you can ask those questions. I'd ask why brachytherapy is recommended, and if yes, will you refer me to radiation oncology? It will be the radiation oncologist who will evaluate you and your pathology to make treatment recommendations for how much radiation and how it will be administered.

On what day is your appointment?

@alohman08 Thank you for the kind words and will keep you in my prayers. I am learning so much. I was diagnosed in June 2025 with High grade Serous Endometrial Adenocarcinoma. July 9, 2025I had a complete hysterectomy robotically. They staged it as lllC2. Had a CT Scan in August with a CA125 of 3.1. November 1, CT scan was CA125 of2.8 everything normal with no metastases found. So I have decided to wait another three months to get thru the holidays. They told me they felt they got it all with surgery but want to make sure with 6 chemo treats followed by 5 weeks of radiation. Several people have said if there is no cancer or indication way do chemo and radiation as that is aggressive in itself. I feel pressured by chemo and especially by radiation doctors which makes me wonder if they did get it all or if something happened during surgery. I also had a incident with the radiation doctor that also was pressure. I don't want to make waves with that doctor as he may be administering my radiation if I decide to do it. But my consultation was more than that as they insert markers in my cervex without me understanding what they were doing. Any input you can give is helpful, Several terms I don't understand p3mutated and HER2 2+ a lot more but will start with these. I need to fully understand these terms. Thank you for replying.