Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Besides a diagnosis of Parkinson's Disease, I have Peripheral Neuropathy, Irregular heart beat (Bigeminy), Epilepsy, mild Cognitive Decline, Raynaud's Syndrome, vision problems, GI problems, and a host of other disorders/problems all of which may be non-motor P/D symptoms/problems/disorders (which would fill up the whole page!)
Please let me know if and what you have besides P/D! I'm on multiple Mayo groups and many topics sound oh,so Parkinson's to me.
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In addition to being diagnosed with Parkinson’s Disease 8 years ago, I had polio, as a child, and now have post-polio syndrome. I have to deal with atrial fibrillation, severe osteoarthritis, fatty liver disease, hypertension, epilepsy, severe migraines, peripheral neuropathy, anaemia, supraventricular tachycardia, and who knows what else! I’m at the point now, that I am reluctant to go to my annual physical, for fear the Dr. may find something else!
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3 Reactions@foundryrat743, we have a few things in common: fibrillation, osteo arth., migraines, epilepsy, peri.neuropathy, tachycardia (fixed it with a ventricular ablation. very easy, very fast).
Your What Else is intriguing..My list goes on: Raynaud"s, rosacea, major vision problems like blurry eyesight, drooping eyelid, depth perception probs, chronic back pain with spine abnormalities ...yes, about a zillion other things, constipation/diahrrea, you know, the typical batch of 'non-motor symptoms' that you have to go to scores of specialists for treatment.
I just keep finding people who have the same bunch of shared ailments. Wondering if there's some connection to the PD.
Some time, visit Mayo" other groups, like neuropathy, migraine, pain...you'll see stuff that mmakes you yell Me too!! and waant to tell them it's not what-ever, it's PD. Just saying...
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2 Reactions@barryl , LOL...my dog does that for me; he sleeps pressed against my back!
LOL But thanks for the info. I might just try it!
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1 Reaction@bruizersmom - I'll send you a sleep noodle if you'll send me that dog!
@jatonlouise Oh my Queen of satire; I just wanted to say how much I appreciate your posts! You are such an inspiration as I enter my “but wait-there’s more” phase. I aspire to keep myself, my doctors and my friends laughing. Thank you for being the light that shows through the cracks.
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1 Reaction@janna2 , oh yes. That she is (jatonlouiese, of course). I try to put some fun into this medical madness, but I continuously fail!
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2 Reactions@bruizersmom
I can never keep it straight - just know 1 word is Lichen and the other Planus. I had a devil of a time finding out ehat it was. Silly me ! It's a skin problem, so I thought a dermitologust would have a clue. Nope! It's in my mouyh so I though my dentist might know what it was. Nope! So I went back to the dermitologist and the other dr. In the practice overheard our conversation and referred me to a practice specializing in disorders of the mucous nembranes. So that's where I got the diagnosis. The treatment is a salve with cortizone specially firmulated for inside the mouth.
Volon A haftsalbe
1mg/g
Triamcinolonacetonid
At least that's what it's called in Germany. The clinic I went to said I should come in to have it checked every 6 months. About 5% of the people who have this get mouth cancer so I should come back in 6 mos. But shortly thereafter I trued to crossed the street at a place I should have kniwn better than to try, and I underestimated how fast a car was coming while simultaneousely overestimated how fast I could walk and tried to cross the street but fell in front of a car -- scaring a poor young man to death--and ended up shattering breaking my arm which is niw keot together with a tutanium rod. This whole littke episode was probably related to my PD (which had not yet been diagnosed). Hence, I didn't keep my folliw-up with the mucus membrane clinic and by the timr my arm healed, I had started my magical mystery tour down the yellow brick road to PD diagnosis. -- a 2-3 year diversion. But my primary care gives me my prescrption for the cortizone salve. I eventually need to get it checked again to make sure I haven't welcomed cancer on my list of maladies. Jimmy the Greek in Las Vegas may be offering odds on thus so perhaos I ought to touch base with him . Hmmmm I'm seeing an imspiration for a board game for PD folks. We could call it "Mr. PD meets zMs. Co-morbidities". With the goal being to have your co- morbidities rescue you from Mr. PD. so you can hop onpathyto the Black Train before Stage 5 visits you.
BTW, if zlMs. Peripheral Myopathy has been to vidit she failed to leave a calling card thus far. O, I forgot about my sleep apnea. Wrestling with the CPAP with my shattered arm and my journey to the magical PDLandia became a tad much, and when I got a notice that the asbestos insulation in my CPAP was connected to cancer, I figured I' had enough justification for canceling my lease on the CPAP.
Don't know what specialty treats Planus Lichen Planus ( and it might be different in the US than it is in Germany. Options could be : 1) Immunologist or allergy doctor because it is an autoimmune disease: 2. dermatologist because it's skin;; 3. dentist because it's in your .mouth; 4 oncoligist becsuse it's a precursor to cancer;5. ENT because it's in the same neighborhood with your mouth.
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1 ReactionThanks for the hug! It was a good one. 🤗🥰